Stanze, Henrikje

[["dc.bibliographiccitation.firstpage","191"],["dc.bibliographiccitation.issue","3"],["dc.bibliographiccitation.journal","PADUA"],["dc.bibliographiccitation.lastpage","195"],["dc.bibliographiccitation.volume","14"],["dc.contributor.author","Stanze, Henrikje"],["dc.contributor.author","Nauck, Friedemann"],["dc.date.accessioned","2022-02-21T12:23:23Z"],["dc.date.available","2022-02-21T12:23:23Z"],["dc.date.issued","2019"],["dc.description.abstract","Gesundheitliche Versorgungsplanung für die letzte Lebensphase nach § 132 g, oder auch Behandlung im Voraus Planen (BVP) genannt, ist ein systematischer Gesprächsprozess, bei dem mit Bewohnern die Wünsche zu medizinischen, pflegerischen, psychosozialen und seelsorglichen Behandlung besprochen werden. Die Gespräche können speziell ausgebildete Personen aus nicht-ärztlichen Berufsgruppen führen. Die Weiterbildungsmaßnahme folgt einem vorgeschriebenen Kerncurriculum, eine Trainerqualifikation ist nicht vorgeschrieben."],["dc.identifier.doi","10.1024/1861-6186/a000496"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/100137"],["dc.language.iso","de"],["dc.relation.issn","1861-6186"],["dc.relation.issn","2235-218X"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.title","Weiterbildung für Advance Care Planning"],["dc.title.subtitle","Weiterbildungsangebot zur Gesprächsbegleiterin, zum Gesprächsbegleiter ohne Trainerqualifikation?"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.subtype","original_ja"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","59"],["dc.bibliographiccitation.issue","10"],["dc.bibliographiccitation.journal","Im Fokus Onkologie"],["dc.bibliographiccitation.lastpage","62"],["dc.bibliographiccitation.volume","21"],["dc.contributor.author","Stanze, Henrikje"],["dc.contributor.author","Nauck, Friedemann"],["dc.date.accessioned","2022-02-21T12:35:30Z"],["dc.date.available","2022-02-21T12:35:30Z"],["dc.date.issued","2018"],["dc.description.abstract","Die Behandlungsbedürfnisse eines Patienten mit einer Krebserkrankung können sich im Krankheitsverlauf ändern. Deshalb sollten sie und ihre Angehörigen in regelmäßigen Abständen ein professionelles Gesprächsangebot zur weiteren Behandlung erhalten. Die Betroffenen aktiv in die Entscheidungen über den Behandlungsverlauf einzubinden, gehört zum Konzept des „Advance Care Planning“."],["dc.identifier.doi","10.1007/s15015-018-4241-2"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/100142"],["dc.language.iso","de"],["dc.relation.issn","1435-7402"],["dc.relation.issn","2192-5674"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.title","„Advance Care Planning” in der Onkologie"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.subtype","original_ja"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.artnumber","770"],["dc.bibliographiccitation.issue","1"],["dc.bibliographiccitation.journal","Trials"],["dc.bibliographiccitation.volume","23"],["dc.contributor.author","Götze, Kornelia"],["dc.contributor.author","Bausewein, Claudia"],["dc.contributor.author","Feddersen, Berend"],["dc.contributor.author","Fuchs, Angela"],["dc.contributor.author","Hot, Amra"],["dc.contributor.author","Icks, Andrea"],["dc.contributor.author","Kirchner, Änne"],["dc.contributor.author","Kleinert, Evelyn"],["dc.contributor.author","Klosterhalfen, Stephanie"],["dc.contributor.author","Kolbe, Henrike"],["dc.contributor.author","Laag, Sonja"],["dc.contributor.author","Langner, Henriette"],["dc.contributor.author","Lezius, Susanne"],["dc.contributor.author","Meyer, Gabriele"],["dc.contributor.author","Montalbo, Joseph"],["dc.contributor.author","Reisinger, Christine"],["dc.contributor.author","Rieder, Nicola"],["dc.contributor.author","Schildmann, Jan"],["dc.contributor.author","Schunk, Michaela"],["dc.contributor.author","Vogel, Christiane"],["dc.contributor.author","Wegscheider, Karl"],["dc.contributor.author","Marckmann, Georg"],["dc.contributor.author","in der Schmitten, Jürgen"],["dc.contributor.author","Albert, Annika"],["dc.contributor.author","Alheid, Cornelia"],["dc.contributor.author","Bausewein, Claudia"],["dc.contributor.author","Bruene, Manuela"],["dc.contributor.author","Calles, Christian"],["dc.contributor.author","Camci, Havva"],["dc.contributor.author","Daubmann, Anne"],["dc.contributor.author","Dahlke, Sophie"],["dc.contributor.author","Enger, Stephanie"],["dc.contributor.author","Feddersen, Berend"],["dc.contributor.author","Felder, Gerd"],["dc.contributor.author","Fluck, Carsten"],["dc.contributor.author","Freienstein, Andreas"],["dc.contributor.author","Freytag, Theresa"],["dc.contributor.author","Fuchs, Angela"],["dc.contributor.author","Icks, Andrea"],["dc.contributor.author","in der Schmitten, Jürgen"],["dc.contributor.author","Hensel, Lena"],["dc.contributor.author","Hummers, Eva"],["dc.contributor.author","Hot, Amra"],["dc.contributor.author","Kirchner, Änne"],["dc.contributor.author","Kleinert, Evelyn"],["dc.contributor.author","Klosterhalfen, Stephanie"],["dc.contributor.author","Kolbe, Henrike"],["dc.contributor.author","Laag, Sonja"],["dc.contributor.author","Langner, Henriette"],["dc.contributor.author","Lezius, Susanne"],["dc.contributor.author","Marckmann, Georg"],["dc.contributor.author","Meyer, Gabriele"],["dc.contributor.author","Montalbo, Jospeh"],["dc.contributor.author","Nauck, Friedemann"],["dc.contributor.author","Nguyen, Thuy"],["dc.contributor.author","Nowak, Andre"],["dc.contributor.author","Ossenberg, Malte"],["dc.contributor.author","Reisinger, Christine"],["dc.contributor.author","Reuter, Sophia"],["dc.contributor.author","Rieder, Nicola"],["dc.contributor.author","Riester, Tanja"],["dc.contributor.author","Rosu, Irina"],["dc.contributor.author","Rösgen, Holger"],["dc.contributor.author","Salanta, Katharina"],["dc.contributor.author","Sassi, Zeinep"],["dc.contributor.author","Schildmann, Jan"],["dc.contributor.author","Schulenberg, Thomas"],["dc.contributor.author","Schunk, Michaela"],["dc.contributor.author","Sommer, Daniela"],["dc.contributor.author","Stanze, Henrikje"],["dc.contributor.author","Stöhr, Andreas"],["dc.contributor.author","Theuerkauf, Anke"],["dc.contributor.author","Thilo, Nancy"],["dc.contributor.author","Tönjann, Jessica"],["dc.contributor.author","Partowinia-Peters, Mahnaz"],["dc.contributor.author","Prommersberger, Sebastian"],["dc.contributor.author","Przybylla, Susanne"],["dc.contributor.author","Vogel, Christiane"],["dc.contributor.author","Vomhof, Markus"],["dc.contributor.author","Wilken, Janka"],["dc.contributor.author","Zapf, Antonia"],["dc.contributor.author","Zimprich, Jennifer"],["dc.contributor.author","Hummers, Eva"],["dc.contributor.author","Nauck, Friedemann"],["dc.contributor.author","Stanze, Henrikje"],["dc.contributor.author","Zapf, Antonia"],["dc.date.accessioned","2022-09-12T11:00:43Z"],["dc.date.available","2022-09-12T11:00:43Z"],["dc.date.issued","2022"],["dc.date.updated","2022-09-18T03:12:10Z"],["dc.description.abstract","Abstract\r\nBackground: According to recent legislation, facilitated advance care planning (ACP) for nursing home (NH) resi-\r\ndents is covered by German sickness funds. However, the effects of ACP on patient-relevant outcomes have not been studied in Germany yet. This study investigates whether implementing a complex regional ACP intervention improves care consistency with care preferences in NH residents.\r\nMethods: This is a parallel-group cluster-randomized controlled trial (cRCT) with 48 NHs (≈ 3840 resident beds)\r\nbetween 09/2019 and 02/2023. The intervention group will receive a complex, regional ACP intervention aiming at sustainable systems redesign at all levels (individual, institutional, regional). The intervention comprises comprehensive training of ACP facilitators, implementation of reliable ACP processes, organizational development in the NH and other relevant institutions of the regional healthcare system, and education of health professionals caring for the residents. Control group NHs will deliver care as usual.Primary outcome is the hospitalization rate during the 12-months observation period. Secondary outcomes include\r\nthe rate of residents whose preferences were known and honored in potentially life-threatening events, hospital days,\r\nindex treatments like resuscitation and artificial ventilation, advance directives, quality of life, psychological burden on\r\nbereaved families, and costs of care.\r\nThe NHs will provide anonymous, aggregated data of all their residents on the primary outcome and several second-\r\nary outcomes (data collection 1). For residents who have given informed consent, we will evaluate care consistency\r\nwith care preferences and further secondary outcomes, based on chart reviews and short interviews with residents,\r\nsurrogates, and carers (data collection 2). Process evaluation will aim to explain barriers and facilitators, economic\r\nevaluation the cost implications.\r\nDiscussion: This study has the potential for high-quality evidence on the effects of a complex regional ACP intervention on NH residents, their families and surrogates, NH staff, and health care utilization in Germany. It is the first cRCT investigating a comprehensive regional ACP intervention that aims at improving patient-relevant clinical outcomes, addressing and educating multiple institutions and health care providers, besides qualification of ACP facilitators. Thereby, it can generate evidence on the potential of ACP to effectively promote patient-centered care in the vulnerable population of frail and often chronically ill elderly.\r\n\r\nTrial registration: Clini calTrials. gov ID NCT04 333303. Registered 30 March 2020.\r\n\r\nKeywords: Advance care planning, Nursing homes, ACP facilitation, Complex intervention, Cluster-randomized\r\ncontrolled trial, Study protocol, Patient-centered care"],["dc.identifier.citation","Trials. 2022 Sep 12;23(1):770"],["dc.identifier.doi","10.1186/s13063-022-06576-3"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/114205"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/114250"],["dc.language.iso","en"],["dc.relation","BEVOR Patienten-relevante Auswirkungen von Behandlung im Voraus planen: cluster-randomisierte Interventionsstudie in Seniorenpflegeeinrichtungen"],["dc.relation.doi","10.1186/s13063-022-06576-3"],["dc.relation.issn","1745-6215"],["dc.relation.orgunit","Institut für Allgemeinmedizin"],["dc.rights","CC BY 4.0"],["dc.rights.holder","The Author(s)"],["dc.subject","Advance care planning"],["dc.subject","Nursing homes"],["dc.subject","ACP facilitation"],["dc.subject","Complex intervention"],["dc.subject","Cluster-randomized controlled trial"],["dc.subject","Study protocol"],["dc.subject","Patient-centered care"],["dc.title","Effectiveness of a complex regional advance care planning intervention to improve care consistency with care preferences: study protocol for a multi-center, cluster-randomized controlled trial focusing on nursing home residents (BEVOR trial)"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.subtype","original_ja"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","3"],["dc.bibliographiccitation.issue","1"],["dc.bibliographiccitation.journal","Therapeutische Umschau"],["dc.bibliographiccitation.lastpage","8"],["dc.bibliographiccitation.volume","79"],["dc.contributor.author","Stanze, Henrikje"],["dc.contributor.author","Nauck, Friedemann"],["dc.date.accessioned","2022-04-01T10:02:36Z"],["dc.date.available","2022-04-01T10:02:36Z"],["dc.date.issued","2022"],["dc.description.abstract","Zusammenfassung. Das internationale Konzept von «Advance Care Planning» (ACP) steht für einen systematischen und qualifizierten Gesprächsprozess zwischen Personen, die über mögliche Krankheitsszenarien in Anwesenheit ihrer Angehörigen und Therapeuten sprechen möchten und ihren Wunsch zu medizinischen, pflegerischen, psychosozialen und seelsorglichen Versorgungen und Behandlungen äussern wollen. In Deutschland wurde im Sozialgesetzbuch (SGB) V der § 132 g zur Gesundheitlichen Versorgungsplanung für die letzte Lebensphase als Versicherungsleistung der Gesetzlichen Krankenkassen (GKV) für bestimmte Patientengruppen festgesetzt, was das ACP-Konzept widerspiegelt. Ein ACP-Konzept, das auf die Strukturen des Gesundheitssystems in Deutschland ausgerichtet ist, ist als «Behandlung im Voraus Planen» (BVP) bundesweit bekannt geworden. Im Rahmen der BVP-Gespräche werden nach dem Prinzip der partizipativen Entscheidungsfindung mit Bewohnern von Senioreneinrichtungen oder mit Menschen in der Eingliederungshilfe die individuellen Wünsche zu zukünftiger Behandlung und Versorgung erfasst und besprochen. In einem Dokument, wie einer Patientenverfügung, können diese Wünsche detailliert festgehalten werden. Diese Gespräche können hierfür speziell ausgebildete Personen aus den ärztlichen, aber auch nicht ärztlichen Berufsgruppen – wie Pflegefachkräfte, Sozialarbeiter, Heilerziehungspfleger, führen. Dazu muss eine dafür entwickelte Weiterbildungsmassnahme, die einem vorgeschriebenen Kerncurriculum des GKV-Spitzenverbands folgt, erfolgreich absolviert werden."],["dc.identifier.doi","10.1024/0040-5930/a001321"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/105958"],["dc.language.iso","de"],["dc.notes.intern","DOI-Import GROB-530"],["dc.relation.eissn","1664-2864"],["dc.relation.issn","0040-5930"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.title","Behandlung im Voraus Planen – ein «Advance Care Planning»-Konzept für Deutschland"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.subtype","original_ja"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.artnumber","e0216778"],["dc.bibliographiccitation.issue","5"],["dc.bibliographiccitation.journal","PLOS ONE"],["dc.bibliographiccitation.volume","14"],["dc.contributor.author","Stanze, Henrikje"],["dc.contributor.author","Schneider, Nils"],["dc.contributor.author","Nauck, Friedemann"],["dc.contributor.author","Marx, Gabriella"],["dc.date.accessioned","2019-07-09T11:51:30Z"],["dc.date.available","2019-07-09T11:51:30Z"],["dc.date.issued","2019"],["dc.description.abstract","BACKGROUND: Caring for patients with advanced lung cancer is of high relevance in different clinical settings. Lung cancer is among the most common causes of death from malignant neoplasms worldwide; with increasing prevalence and mortality. AIM: To get a better understanding of individual patients' needs, exploring the experiences and meaning of living with advanced lung cancer at the end of life, and to develop strategies for improving patient-centred care in Germany. DESIGN: Qualitative explorative interview study with patients, using grounded theory. SETTING/PARTICIPANTS: A sample of 17 adults living with advanced lung cancer in Lower Saxony/Germany was recruited in two university hospitals. Patients were asked to tell of their experiences of living with advanced lung cancer. The emphasis of this study was the period of palliative tumour therapy. RESULTS: The main phenomenon of living with advanced lung cancer is the feeling of having to redefine one's own existence, such as social roles within and outside the family. The diagnosis trigger powerlessness, which can lead to information passivity, followed by acceptance of aggressive tumour treatment. Patients perceive a high degree of psychological and social stress, without being able to express this. There is a lack of regular appropriate psychosocial care accompanying chemotherapy. Patients ascribe their physical suffering to the side effects of tumour treatment, which may trigger a desire to die. Finally, patients tend to hide their individual needs, even when asked. CONCLUSIONS: Regarding the patients' needs, greater emphasis must be placed on psychosocial care as part of the biopsychosocial model to adequately consider the patients' concerns. Assessments can be helpful to enhance communication at an early stage across all professions into the multi-professional therapy."],["dc.identifier.doi","10.1371/journal.pone.0216778"],["dc.identifier.pmid","31086395"],["dc.identifier.purl","https://resolver.sub.uni-goettingen.de/purl?gs-1/16140"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/59960"],["dc.language.iso","en"],["dc.notes.intern","Merged from goescholar"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.rights","CC BY 4.0"],["dc.rights.uri","https://creativecommons.org/licenses/by/4.0"],["dc.subject.ddc","610"],["dc.title","“I can’t get it into my head that I have cancer…” - A qualitative interview study on needs of patients with lung cancer"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","14"],["dc.bibliographiccitation.issue","12"],["dc.bibliographiccitation.journal","Pflegezeitschrift"],["dc.bibliographiccitation.lastpage","16"],["dc.bibliographiccitation.volume","70"],["dc.contributor.author","Stanze, Henrikje"],["dc.contributor.author","Nauck, Friedemann"],["dc.date.accessioned","2022-02-21T12:47:56Z"],["dc.date.available","2022-02-21T12:47:56Z"],["dc.date.issued","2017"],["dc.description.abstract","Das Hospiz- und Palliativgesetz sieht im § 132g vor, Bewohnern und ihren Angehörigen über professionell geschultes Personal ein Gesprächsangebot anzubieten, welches im Rahmen einer gesundheitlichen Versorgungsplanung ermöglicht, die Behandlung für gewisse medizinische und pflegerische Entscheidungssituationen bei Einwilligungsunfähigkeit der betreffenden Person im Voraus zu planen und zu dokumentieren. Dadurch kann das Ziel erreicht werden, Bewohner oder Patienten so zu behandeln, wie sie es wünschen, auch wenn sie sich selbst nicht äußern können. Die Krankenkasse des Versicherten trägt dafür die Kosten und könnte den pflegerischen Arbeitsalltag entlasten.\r\nEine Möglichkeit der Ausbildung zum zertifizierten Gesprächsbegleiter für nichtärztliches Gesundheitspersonal beschreibt der DIV-BVP e.V. in einem Mustercurriculum."],["dc.identifier.doi","10.1007/s41906-017-0313-8"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/100144"],["dc.language.iso","de"],["dc.relation.issn","0945-1129"],["dc.relation.issn","2520-1816"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.title","BVP — Behandlung im Voraus planen"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.subtype","original_ja"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","1"],["dc.bibliographiccitation.issue","03"],["dc.bibliographiccitation.journal","Journal of Palliative Care & Medicine"],["dc.bibliographiccitation.lastpage","6"],["dc.bibliographiccitation.volume","04"],["dc.contributor.author","Marx, Gabriella"],["dc.contributor.author","Stanze, Henrikje"],["dc.contributor.author","Nauck, Friedemann"],["dc.contributor.author","Schneider, N."],["dc.date.accessioned","2022-02-21T07:03:11Z"],["dc.date.available","2022-02-21T07:03:11Z"],["dc.date.issued","2014"],["dc.identifier.doi","10.4172/2165-7386.1000177"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/100051"],["dc.language.iso","en"],["dc.relation.issn","2165-7386"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.title","Understanding the Needs and Perspectives of Patients with Incurable Pulmonary Disease at the End of Life and their Relatives: Protocol of a Qualitative Longitudinal Study"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.subtype","original_ja"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","241"],["dc.bibliographiccitation.issue","05"],["dc.bibliographiccitation.journal","Zeitschrift für Palliativmedizin"],["dc.bibliographiccitation.lastpage","249"],["dc.bibliographiccitation.volume","20"],["dc.contributor.author","Stanze, Henrikje"],["dc.contributor.author","Marx, Gabriella"],["dc.contributor.author","Schneider, Nils"],["dc.contributor.author","Nauck, Friedemann"],["dc.date.accessioned","2020-12-10T18:12:11Z"],["dc.date.available","2020-12-10T18:12:11Z"],["dc.date.issued","2019"],["dc.identifier.doi","10.1055/a-0912-9027"],["dc.identifier.eissn","1615-293X"],["dc.identifier.issn","1615-2921"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/74273"],["dc.language.iso","de"],["dc.notes.intern","DOI Import GROB-354"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.title","Individuelle Bedürfnisse von Patienten mit unheilbarem Lungenkrebs im Krankheitsverlauf – eine qualitative Längsschnittstudie"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","763"],["dc.bibliographiccitation.issue","8"],["dc.bibliographiccitation.journal","Der Onkologe"],["dc.bibliographiccitation.lastpage","770"],["dc.bibliographiccitation.volume","26"],["dc.contributor.author","Stanze, H."],["dc.contributor.author","Nauck, F."],["dc.date.accessioned","2021-04-14T08:24:43Z"],["dc.date.available","2021-04-14T08:24:43Z"],["dc.date.issued","2020"],["dc.identifier.doi","10.1007/s00761-020-00796-5"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/81399"],["dc.language.iso","de"],["dc.notes.intern","DOI Import GROB-399"],["dc.relation.eissn","1433-0415"],["dc.relation.issn","0947-8965"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.title","Advance Care Planning bei Patienten mit onkologischen Erkrankungen"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.artnumber","e011555"],["dc.bibliographiccitation.issue","12"],["dc.bibliographiccitation.journal","BMJ Open"],["dc.bibliographiccitation.volume","6"],["dc.contributor.author","Marx, Gabriella"],["dc.contributor.author","Nasse, Maximilian"],["dc.contributor.author","Stanze, Henrikje"],["dc.contributor.author","Boakye, Sonja Owusu"],["dc.contributor.author","Nauck, Friedemann"],["dc.contributor.author","Schneider, Nils"],["dc.date.accessioned","2018-11-07T10:19:39Z"],["dc.date.available","2018-11-07T10:19:39Z"],["dc.date.issued","2016"],["dc.description.abstract","Objectives: To explore what it means for patients to live with chronic obstructive pulmonary disease (COPD) as an incurable and constantly progressing disease. Design: Qualitative longitudinal study using narrative and semistructured interviews. This paper presents findings of the initial interviews. Analysis using grounded theory. Setting: Lung care clinics and community care in Lower Saxony, Germany. Participants: 17 patients with advanced-stage COPD (Global Initiative for Chronic Obstructive Lung Disease (GOLD) III/IV). Findings: Analysis shows that these patients have difficulties accepting their life situation and feel at the mercy of the disease, which could be identified as a core-experienced phenomenon. Over a long period of time, patients have only a vague feeling of being ill, caused by uncertain knowledge, slow progress and doubtful attribution of clinical symptoms of the disease (causal conditions). As an action strategy, patients try to maintain daily routines for as long as possible after diagnosis. Both effective standard and rescue medication, which helps to reduce breathlessness and other symptoms, and the feeling of being faced with one's own responsibility (intervening conditions) support this strategy, whereby patients' own responsibility is too painful to acknowledge. As a consequence, patients try to deny the threat to life for a long period of time. Frequently, they need to experience facing their own limits, often in the form of an acute crisis, to realise their health situation. The experience of the illness is contextualised by a continuous increase in limited mobility and social isolation. Conclusion: In order to help patients to improve disease awareness, to accept their life situation and to improve their reduced quality of life, patients may benefit from the early integration of palliative care (PC), considering its multiprofessional patient-centred and team-centred approach. Psychological support and volunteer work, which are relevant aspects of PC, should be appropriate to address psychosocial needs. More research is needed to evaluate how patients could benefit from early PC."],["dc.description.sponsorship","Open-Access-Publikationsfonds 2016"],["dc.description.sponsorship","Ministry of Science and Culture in Lower Saxony, Germany [74ZN1079]"],["dc.identifier.doi","10.1136/bmjopen-2016-011555"],["dc.identifier.isi","000391303600095"],["dc.identifier.pmid","27932338"],["dc.identifier.purl","https://resolver.sub.uni-goettingen.de/purl?gs-1/14100"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/41708"],["dc.notes.intern","Merged from goescholar"],["dc.notes.status","zu prüfen"],["dc.notes.submitter","Najko"],["dc.publisher","Bmj Publishing Group"],["dc.relation.issn","2044-6055"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.rights","CC BY-NC 4.0"],["dc.rights.uri","https://creativecommons.org/licenses/by-nc/4.0"],["dc.title","Meaning of living with severe chronic obstructive lung disease: a qualitative study"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.peerReviewed","yes"],["dc.type.status","published"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]