Schaper, Manuel

[["dc.bibliographiccitation.firstpage","31"],["dc.bibliographiccitation.issue","1"],["dc.bibliographiccitation.journal","Medicine, Health Care and Philosophy"],["dc.bibliographiccitation.lastpage","40"],["dc.bibliographiccitation.volume","22"],["dc.contributor.author","Schaper, Manuel"],["dc.contributor.author","Wöhlke, Sabine"],["dc.contributor.author","Schicktanz, Silke"],["dc.date.accessioned","2020-12-10T14:11:43Z"],["dc.date.available","2020-12-10T14:11:43Z"],["dc.date.issued","2018"],["dc.identifier.doi","10.1007/s11019-018-9837-y"],["dc.identifier.eissn","1572-8633"],["dc.identifier.issn","1386-7423"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/71180"],["dc.language.iso","en"],["dc.notes.intern","DOI Import GROB-354"],["dc.title","“I would rather have it done by a doctor”—laypeople’s perceptions of direct-to-consumer genetic testing (DTC GT) and its ethical implications"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.artnumber","380"],["dc.bibliographiccitation.journal","Frontiers in Genetics"],["dc.bibliographiccitation.volume","10"],["dc.contributor.author","Wöhlke, Sabine"],["dc.contributor.author","Schaper, Manuel"],["dc.contributor.author","Schicktanz, Silke"],["dc.date.accessioned","2019-07-09T11:51:15Z"],["dc.date.available","2019-07-09T11:51:15Z"],["dc.date.issued","2019"],["dc.description.abstract","The interpretation of genetic information in clinical settings raises moral issues about adequate risk communication and individual responsibility about one’s health behavior. However, it is not well-known what role numeric probabilities and/or the conception of disease and genetics play in the lay understanding of predictive genetic diagnostics. This is an important question because lay understanding of genetic risk information might have particular implications for self-responsibility of the patients. Aim: Analysis of lay attitudes and risk perceptions of German lay people on genetic testing with a special focus on how they deal with the numerical information. Methods: We conducted and analyzed seven focus group discussions (FG) with lay people (n = 43). Results: Our participants showed a positive attitude toward predictive genetic testing. We identified four main topics: (1) Anumeric risk instead of statistical information; (2) Treatment options as a factor for risk evaluation; (3) Epistemic and aleatory uncertainty as moral criticism; (4) Ambivalence as a sign of uncertainty. Conclusion: For lay people, risk information, including the statistical numeric part, is perceived as highly normatively charged, often as an emotionally significant threat. It seems necessary to provide lay people with a deeper understanding of risk information and of the limitations of genetic knowledge with respect to one’s own health responsibility."],["dc.identifier.doi","10.3389/fgene.2019.00380"],["dc.identifier.purl","https://resolver.sub.uni-goettingen.de/purl?gs-1/16087"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/59909"],["dc.language.iso","en"],["dc.notes.intern","Merged from goescholar"],["dc.publisher","Frontiers Media S.A."],["dc.relation.eissn","1664-8021"],["dc.rights","CC BY 4.0"],["dc.rights.uri","https://creativecommons.org/licenses/by/4.0"],["dc.subject.ddc","610"],["dc.title","How Uncertainty Influences Lay People’s Attitudes and Risk Perceptions Concerning Predictive Genetic Testing and Risk Communication"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.journal","Frontiers in Genetics"],["dc.bibliographiccitation.volume","11"],["dc.contributor.author","Wöhlke, Sabine"],["dc.contributor.author","Schaper, Manuel"],["dc.contributor.author","Oliveri, Serena"],["dc.contributor.author","Cutica, Ilaria"],["dc.contributor.author","Spinella, Francesca"],["dc.contributor.author","Pravettoni, Gabriella"],["dc.contributor.author","Steinberger, Daniela"],["dc.contributor.author","Schicktanz, Silke"],["dc.date.accessioned","2020-12-10T18:44:24Z"],["dc.date.available","2020-12-10T18:44:24Z"],["dc.date.issued","2020"],["dc.description.abstract","Genetic information is increasingly provided outside of the traditional clinical setting, allowing users to access it directly via specialized online platforms. This development is possibly resulting in changing ethical and social challenges for users of predictive genetic tests. Little is known about the attitudes and experiences of users of web-accessed genetic information. This survey analyzes data from two European countries with regard to the utility of genetic information, the users’ ways of making use of and dealing with information, and their sharing behavior. Particular focus is given to ethical and social questions regarding the motivation to share personal genetic results with others. Social factors tested for are national background, gender, and marital, parental, and educational status. This study will contribute to public discourse and offer ethical recommendations. The study will also serve to validate the developed questionnaire for use in population representative surveys."],["dc.identifier.doi","10.3389/fgene.2020.00102"],["dc.identifier.eissn","1664-8021"],["dc.identifier.purl","https://resolver.sub.uni-goettingen.de/purl?gs-1/17397"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/78436"],["dc.language.iso","en"],["dc.notes.intern","DOI Import GROB-354"],["dc.publisher","Frontiers Media S.A."],["dc.relation.eissn","1664-8021"],["dc.rights","http://creativecommons.org/licenses/by/4.0/"],["dc.title","German and Italian Users of Web-Accessed Genetic Data: Attitudes on Personal Utility and Personal Sharing Preferences. Results of a Comparative Survey (n=192)"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dspace.entity.type","Publication"]]