Ellenberger, David

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[["dc.bibliographiccitation.firstpage","173"],["dc.bibliographiccitation.journal","Multiple Sclerosis and Related Disorders"],["dc.bibliographiccitation.lastpage","174"],["dc.bibliographiccitation.volume","25"],["dc.contributor.author","Ellenberger, David"],["dc.contributor.author","Eichstädt, Kerstin"],["dc.contributor.author","Flachenecker, Peter"],["dc.contributor.author","Friede, Tim"],["dc.contributor.author","Haas, Judith"],["dc.contributor.author","Kleinschnitz, Christoph"],["dc.contributor.author","Pöhlau, Dieter"],["dc.contributor.author","Rienhoff, Otto"],["dc.contributor.author","Stahmann, Alexander"],["dc.contributor.author","Zettl, Uwe K"],["dc.contributor.author","Rommer, Paulus S"],["dc.date.accessioned","2020-12-10T15:20:23Z"],["dc.date.available","2020-12-10T15:20:23Z"],["dc.date.issued","2018"],["dc.identifier.doi","10.1016/j.msard.2018.07.040"],["dc.identifier.issn","2211-0348"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/72654"],["dc.language.iso","en"],["dc.notes.intern","DOI Import GROB-354"],["dc.title","Decreasing longitudinal use of glucocorticosteroids in multiple sclerosis"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.journal","Multiple Sclerosis Journal"],["dc.bibliographiccitation.volume","21"],["dc.contributor.author","Flachenecker, Peter"],["dc.contributor.author","Sterz, C."],["dc.contributor.author","Ellenberger, David"],["dc.contributor.author","Meissner, H."],["dc.contributor.author","Gusowski, K."],["dc.contributor.author","Friede, Tim"],["dc.date.accessioned","2018-11-07T09:51:59Z"],["dc.date.available","2018-11-07T09:51:59Z"],["dc.date.issued","2015"],["dc.format.extent","122"],["dc.identifier.isi","000365729400209"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/36022"],["dc.notes.status","zu prüfen"],["dc.notes.submitter","Najko"],["dc.publisher","Sage Publications Ltd"],["dc.publisher.place","London"],["dc.relation.conference","31st Congress of the European-Committee-for-Treatment-and-Research-in-Multiple-Sclerosis (ECTRIMS)"],["dc.relation.eventlocation","Barcelona, SPAIN"],["dc.relation.issn","1477-0970"],["dc.relation.issn","1352-4585"],["dc.title","Development and validation of employment-specific assessment instruments in German MS patients"],["dc.type","conference_abstract"],["dc.type.internalPublication","yes"],["dc.type.peerReviewed","yes"],["dc.type.status","published"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","436"],["dc.bibliographiccitation.issue","07"],["dc.bibliographiccitation.journal","Fortschritte der Neurologie · Psychiatrie"],["dc.bibliographiccitation.lastpage","450"],["dc.bibliographiccitation.volume","88"],["dc.contributor.author","Flachenecker, Peter"],["dc.contributor.author","Eichstädt, Kerstin"],["dc.contributor.author","Berger, Klaus"],["dc.contributor.author","Ellenberger, David"],["dc.contributor.author","Friede, Tim"],["dc.contributor.author","Haas, Judith"],["dc.contributor.author","Kleinschnitz, Christoph"],["dc.contributor.author","Pöhlau, Dieter"],["dc.contributor.author","Rienhoff, Otto"],["dc.contributor.author","Stahmann, Alexander"],["dc.contributor.author","Zettl, Uwe K."],["dc.date.accessioned","2021-04-14T08:25:41Z"],["dc.date.available","2021-04-14T08:25:41Z"],["dc.date.issued","2020"],["dc.identifier.doi","10.1055/a-0985-4124"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/81707"],["dc.language.iso","de"],["dc.notes.intern","DOI Import GROB-399"],["dc.relation.eissn","1439-3522"],["dc.relation.issn","0720-4299"],["dc.title","Multiple Sklerose in Deutschland: aktualisierte Auswertungen des MS-Registers der DMSG 2014–2018"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","24"],["dc.bibliographiccitation.journal","Acta Neurologica Scandinavica"],["dc.bibliographiccitation.lastpage","30"],["dc.bibliographiccitation.volume","126"],["dc.contributor.author","Pugliatti, Maura"],["dc.contributor.author","Eskic, Danica"],["dc.contributor.author","Mikolcic, T."],["dc.contributor.author","Pitschnau-Michel, Dorothea"],["dc.contributor.author","Myhr, K.-M."],["dc.contributor.author","Sastre-Garriga, Jaume"],["dc.contributor.author","Otero, Susana"],["dc.contributor.author","Wieczynska, L."],["dc.contributor.author","Torje, C."],["dc.contributor.author","Holloway, Edward"],["dc.contributor.author","Rienhoff, Otto"],["dc.contributor.author","Friede, Tim"],["dc.contributor.author","Buckow, Karoline"],["dc.contributor.author","Ellenberger, David"],["dc.contributor.author","Hillert, Jan"],["dc.contributor.author","Glaser, Anna"],["dc.contributor.author","Flachenecker, Peter"],["dc.contributor.author","Fuge, Jan"],["dc.contributor.author","Schyns-Liharska, Tsveta"],["dc.contributor.author","Kasilingam, E."],["dc.contributor.author","Moretti, A."],["dc.contributor.author","Thalheim, Christoph"],["dc.date.accessioned","2018-11-07T09:02:24Z"],["dc.date.available","2018-11-07T09:02:24Z"],["dc.date.issued","2012"],["dc.description.abstract","Objectives - Persons with multiple sclerosis (PwMS) experience health-related quality of life (HRQoL) problems greatly differing across Europe, and the European Union (EU) faces deep inequalities in MS management from country to country. Through the establishment of a European MS Register (EUReMS), an effective action is proposed to improve the overall knowledge on MS and support effective intervention programmes at EU and national political level. EUReMS aims to achieve consensus on its mission and vision, to define existing data providers, to develop models driving future MS health policies and research, to develop an information technology (IT) infrastructure for a data set, to develop a European shared governance and to secure providers' data provision into EUReMS. Materials and methods - EUReMS is meant to build on a minimum set of core data from existing national and regional population-based MS registries and from PwMS' perspectives. EUReMS' main partner is the European MS Platform (EMSP) acting in collaboration with associated and collaborating European partners. Results - EUReMS was launched in July 2011. A Consensus Statement on purposes, vision, mission and strategies was produced in December 2011, and a comprehensive survey on existing MS data collections in Europe has been performed, and the EUReMS data mask is currently being discussed. Conclusions - EUReMS will represent a tool to provide up to date, comparable and sustainable MS data through an effective and credible register, which will encourage extensive knowledge building of MS, more equitable policies and higher standards in MS treatment and services."],["dc.identifier.doi","10.1111/ane.12024"],["dc.identifier.isi","000316128600006"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/24677"],["dc.notes.status","zu prüfen"],["dc.notes.submitter","Najko"],["dc.publisher","Wiley-blackwell"],["dc.relation.issn","0001-6314"],["dc.title","Assess, compare and enhance the status of Persons with Multiple Sclerosis (MS) in Europe: a European Register for MS"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.peerReviewed","yes"],["dc.type.status","published"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.artnumber","13340"],["dc.bibliographiccitation.issue","1"],["dc.bibliographiccitation.journal","Scientific Reports"],["dc.bibliographiccitation.volume","11"],["dc.contributor.author","Ohle, Lisa-Marie"],["dc.contributor.author","Ellenberger, David"],["dc.contributor.author","Flachenecker, Peter"],["dc.contributor.author","Friede, Tim"],["dc.contributor.author","Haas, Judith"],["dc.contributor.author","Hellwig, Kerstin"],["dc.contributor.author","Parciak, Tina"],["dc.contributor.author","Warnke, Clemens"],["dc.contributor.author","Paul, Friedemann"],["dc.contributor.author","Stahmann, Alexander"],["dc.date.accessioned","2021-08-12T07:45:01Z"],["dc.date.available","2021-08-12T07:45:01Z"],["dc.date.issued","2021"],["dc.description.abstract","Abstract In 2001, the German Multiple Sclerosis Society, facing lack of data, founded the German MS Registry (GMSR) as a long-term data repository for MS healthcare research. By the establishment of a network of participating neurological centres of different healthcare sectors across Germany, GMSR provides observational real-world data on long-term disease progression, sociodemographic factors, treatment and the healthcare status of people with MS. This paper aims to illustrate the framework of the GMSR. Structure, design and data quality processes as well as collaborations of the GMSR are presented. The registry’s dataset, status and results are discussed. As of 08 January 2021, 187 centres from different healthcare sectors participate in the GMSR. Following its infrastructure and dataset specification upgrades in 2014, more than 196,000 visits have been recorded relating to more than 33,000 persons with MS (PwMS). The GMSR enables monitoring of PwMS in Germany, supports scientific research projects, and collaborates with national and international MS data repositories and initiatives. With its recent pharmacovigilance extension, it aligns with EMA recommendations and helps to ensure early detection of therapy-related safety signals."],["dc.description.abstract","Abstract In 2001, the German Multiple Sclerosis Society, facing lack of data, founded the German MS Registry (GMSR) as a long-term data repository for MS healthcare research. By the establishment of a network of participating neurological centres of different healthcare sectors across Germany, GMSR provides observational real-world data on long-term disease progression, sociodemographic factors, treatment and the healthcare status of people with MS. This paper aims to illustrate the framework of the GMSR. Structure, design and data quality processes as well as collaborations of the GMSR are presented. The registry\\’s dataset, status and results are discussed. As of 08 January 2021, 187 centres from different healthcare sectors participate in the GMSR. Following its infrastructure and dataset specification upgrades in 2014, more than 196,000 visits have been recorded relating to more than 33,000 persons with MS (PwMS). The GMSR enables monitoring of PwMS in Germany, supports scientific research projects, and collaborates with national and international MS data repositories and initiatives. With its recent pharmacovigilance extension, it aligns with EMA recommendations and helps to ensure early detection of therapy-related safety signals."],["dc.identifier.doi","10.1038/s41598-021-92722-x"],["dc.identifier.pii","92722"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/88352"],["dc.language.iso","en"],["dc.notes.intern","DOI Import GROB-448"],["dc.relation.eissn","2045-2322"],["dc.title","Chances and challenges of a long-term data repository in multiple sclerosis: 20th birthday of the German MS registry"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.journal","Multiple Sclerosis Journal"],["dc.bibliographiccitation.volume","21"],["dc.contributor.author","Ellenberger, David"],["dc.contributor.author","Friede, Tim"],["dc.contributor.author","Sterz, C."],["dc.contributor.author","Flachenecker, Peter"],["dc.date.accessioned","2018-11-07T09:51:59Z"],["dc.date.available","2018-11-07T09:51:59Z"],["dc.date.issued","2015"],["dc.format.extent","128"],["dc.identifier.isi","000365729400219"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/36024"],["dc.notes.status","zu prüfen"],["dc.notes.submitter","Najko"],["dc.publisher","Sage Publications Ltd"],["dc.publisher.place","London"],["dc.relation.conference","31st Congress of the European-Committee-for-Treatment-and-Research-in-Multiple-Sclerosis (ECTRIMS)"],["dc.relation.eventlocation","Barcelona, SPAIN"],["dc.relation.issn","1477-0970"],["dc.relation.issn","1352-4585"],["dc.title","Validation of the German version of the multiple sclerosis work difficulties questionnaire (MSWDQ)"],["dc.type","conference_abstract"],["dc.type.internalPublication","yes"],["dc.type.peerReviewed","yes"],["dc.type.status","published"],["dspace.entity.type","Publication"]]