Jansky, Maximiliane Katharina

[["dc.bibliographiccitation.firstpage","1502"],["dc.bibliographiccitation.issue","12"],["dc.bibliographiccitation.journal","Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz"],["dc.bibliographiccitation.lastpage","1510"],["dc.bibliographiccitation.volume","63"],["dc.contributor.author","Ditscheid, Bianka"],["dc.contributor.author","Krause, Markus"],["dc.contributor.author","Lehmann, Thomas"],["dc.contributor.author","Stichling, Kathleen"],["dc.contributor.author","Jansky, Maximiliane"],["dc.contributor.author","Nauck, Friedemann"],["dc.contributor.author","Wedding, Ulrich"],["dc.contributor.author","Schneider, Werner"],["dc.contributor.author","Marschall, Ursula"],["dc.contributor.author","Meißner, Winfried"],["dc.contributor.author","Freytag, Antje"],["dc.date.accessioned","2021-04-14T08:32:15Z"],["dc.date.available","2021-04-14T08:32:15Z"],["dc.date.issued","2020"],["dc.identifier.doi","10.1007/s00103-020-03240-6"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/83862"],["dc.language.iso","de"],["dc.notes.intern","DOI Import GROB-399"],["dc.relation.eissn","1437-1588"],["dc.relation.issn","1436-9990"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.title","Palliativversorgung am Lebensende in Deutschland"],["dc.title.alternative","Inanspruchnahme und regionale Verteilung"],["dc.title.translated","Palliative care at the end of life in Germany : Utilization and regional distribution"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.journal","Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen"],["dc.contributor.author","Gebel, Cordula"],["dc.contributor.author","Rothaug, Judith"],["dc.contributor.author","Kruschel, Isabel"],["dc.contributor.author","Lehmann, Thomas"],["dc.contributor.author","Jansky, Maximiliane Katharina"],["dc.contributor.author","Nauck, Friedemann"],["dc.contributor.author","Freytag, Antje"],["dc.contributor.author","Bauer, Anna"],["dc.contributor.author","Krauss, Sabine H."],["dc.contributor.author","Schneider, Werner"],["dc.contributor.author","Nageler, Cornelia"],["dc.contributor.author","Meißner, Winfried"],["dc.contributor.author","Wedding, Ulrich"],["dc.date.accessioned","2022-03-07T07:26:17Z"],["dc.date.available","2022-03-07T07:26:17Z"],["dc.date.issued","2021-12-23"],["dc.description.abstract","Since 2007, patients receiving palliative care have been entitled to specialised outpatient palliative care (SAPV). Until now, the quality of care of the SAPV was only regionally focussed or in relation to individual SAPV teams. A nationwide analysis of outcome quality is still awaited. The organisation and design of structures and processes vary greatly from region to region, which complicates a comparative assessment of implementation. One way to measure the quality of the heterogeneous structures and processes is to collect patient-reported outcomes. Here, it is possible to use symptom burden, quality of care and patient satisfaction with SAPV care, since patients' quality of life is a central focus of SAPV care. This article is part of the research project SAVOIR, which is funded by the G-BA Innovation Fund."],["dc.identifier.doi","10.1016/j.zefq.2021.10.001"],["dc.identifier.pmid","34955440"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/104368"],["dc.language.iso","de"],["dc.relation.eissn","2212-0289"],["dc.relation.issn","1865-9217"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.title","Symptomverlauf, Betreuungsqualität und Zufriedenheit mit der spezialisierten ambulanten Palliativversorgung (SAPV) aus Patient innenperspektive: eine bundesweite prospektive Längsschnittstudie"],["dc.title.alternative","Patient-reported outcomes and quality of care in specialized palliative home care: a nationwide, prospective longitudinal cohort trial"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.subtype","original_ja"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","1158"],["dc.bibliographiccitation.issue","6"],["dc.bibliographiccitation.journal","Palliative Medicine"],["dc.bibliographiccitation.lastpage","1169"],["dc.bibliographiccitation.volume","35"],["dc.contributor.author","Krause, Markus"],["dc.contributor.author","Ditscheid, Bianka"],["dc.contributor.author","Lehmann, Thomas"],["dc.contributor.author","Jansky, Maximiliane"],["dc.contributor.author","Marschall, Ursula"],["dc.contributor.author","Meißner, Winfried"],["dc.contributor.author","Nauck, Friedemann"],["dc.contributor.author","Wedding, Ulrich"],["dc.contributor.author","Freytag, Antje"],["dc.date.accessioned","2021-07-05T14:57:47Z"],["dc.date.available","2021-07-05T14:57:47Z"],["dc.date.issued","2021"],["dc.description.abstract","Background: Comparative effectiveness of different types of palliative homecare is sparsely researched internationally—despite its potential to inform necessary decisions in palliative care infrastructure development. In Germany, specialized palliative homecare delivered by multi-professional teams has increased in recent years and factors beyond medical need seem to drive its involvement and affect the application of primary palliative care, delivered by general practitioners who are supported by nursing services. Aim: To compare effectiveness of primary palliative care and specialized palliative homecare in reducing potentially aggressive interventions at the end-of-life in cancer and non-cancer. Design: Retrospective population-based study with claims data from 95,962 deceased adults in Germany in 2016 using multivariable regression analyses. Settings/participants: Patients having received primary palliative care or specialized palliative homecare (alone or in addition to primary palliative care), for at least 14 days before death, differentiating between cancer and non-cancer patients. Results: Rates of potentially aggressive interventions in most indicators were higher in primary palliative care than in specialized palliative homecare ( p < 0.01), in both cancer and non-cancer patients: death in hospital (odds ratio (OR) 4.541), hospital care (OR 2.720), intensive care treatment (OR 6.749), chemotherapy (OR 2.173), and application of a percutaneous endoscopic gastrostomy (OR 4.476), but not for parenteral nutrition (OR 0.477). Conclusion: Specialized palliative homecare is more strongly associated with reduction of potentially aggressive interventions than primary palliative care in the last days of life. Future research should identify elements of specialized palliative homecare applicable for more effective primary palliative care, too. German Clinical Trials Register (DRKS00014730)."],["dc.description.abstract","Background: Comparative effectiveness of different types of palliative homecare is sparsely researched internationally—despite its potential to inform necessary decisions in palliative care infrastructure development. In Germany, specialized palliative homecare delivered by multi-professional teams has increased in recent years and factors beyond medical need seem to drive its involvement and affect the application of primary palliative care, delivered by general practitioners who are supported by nursing services. Aim: To compare effectiveness of primary palliative care and specialized palliative homecare in reducing potentially aggressive interventions at the end-of-life in cancer and non-cancer. Design: Retrospective population-based study with claims data from 95,962 deceased adults in Germany in 2016 using multivariable regression analyses. Settings/participants: Patients having received primary palliative care or specialized palliative homecare (alone or in addition to primary palliative care), for at least 14 days before death, differentiating between cancer and non-cancer patients. Results: Rates of potentially aggressive interventions in most indicators were higher in primary palliative care than in specialized palliative homecare ( p < 0.01), in both cancer and non-cancer patients: death in hospital (odds ratio (OR) 4.541), hospital care (OR 2.720), intensive care treatment (OR 6.749), chemotherapy (OR 2.173), and application of a percutaneous endoscopic gastrostomy (OR 4.476), but not for parenteral nutrition (OR 0.477). Conclusion: Specialized palliative homecare is more strongly associated with reduction of potentially aggressive interventions than primary palliative care in the last days of life. Future research should identify elements of specialized palliative homecare applicable for more effective primary palliative care, too. German Clinical Trials Register (DRKS00014730)."],["dc.identifier.doi","10.1177/02692163211013666"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/87735"],["dc.language.iso","en"],["dc.notes.intern","DOI-Import GROB-441"],["dc.relation.eissn","1477-030X"],["dc.relation.issn","0269-2163"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.title","Effectiveness of two types of palliative home care in cancer and non-cancer patients: A retrospective population-based study using claims data"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.subtype","original_ja"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.journal","Das Gesundheitswesen"],["dc.contributor.author","Gebel, Cordula"],["dc.contributor.author","Kloppenburg, Lars"],["dc.contributor.author","Jansky, Maximiliane Katharina"],["dc.contributor.author","Nauck, Friedemann"],["dc.contributor.author","Schade, Franziska"],["dc.contributor.author","Wedding, Ulrich"],["dc.date.accessioned","2022-07-12T11:20:51Z"],["dc.date.available","2022-07-12T11:20:51Z"],["dc.date.issued","2022-01-28"],["dc.description.abstract","Objectives  The aim of this study was to explore the impact of the COVID-19 pandemic and the efforts taken to contain it on specialized palliative homecare (SPHC) practice from the perspective of SPHC team leaders.Methods  In this cross-sectional study, an online questionnaire with quantitative and qualitative questions was developed and used, focusing on the experience of SAPV in the first and second wave of the COVID-19 pandemic in Germany. In a structured recruitment process, all German SPHC teams (n=357) were invited to participate. Results  From 10/10/2020 to 07/01/2021, 154 SPHC teams participated (response rate 43%). They described clear effects of the COVID-19 pandemic on their activities. Despite pandemic-related problems with staff availability (78.5%), patient care was ensured without major problems. The number of patients to be cared for remained stable for most teams, was increasing for some, and decreasing only for a few. A central factor was the switch from direct contact with patients and their relatives to telephone contact. Additional complicating factors were the general avoidance of contacts, compliance with hygiene regulations for necessary personal contacts, and pandemic-related uncertainties and fears, both among the team itself and among relatives and patients. The procurement of protective equipment was a challenge during the first wave. Problems in collaboration with network partners (e. g., nursing homes and volunteer hospice services) had decreased over the course of the pandemic, but were greater than before in all areas. Many measures to cope with the pandemic challenges were implemented, others were assessed as useful but not implemented, and others as not useful or feasible. Conclusions  SPHC teams report that despite the need to adapt many processes to the pandemic situation, they have managed to maintain patient care, although under more difficult conditions."],["dc.identifier.doi","10.1055/a-1714-8336"],["dc.identifier.pmid","35098500"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/112476"],["dc.language.iso","de"],["dc.relation.doi","10.1055/a-1714-8336"],["dc.relation.eissn","1439-4421"],["dc.relation.issn","0941-3790"],["dc.relation.issn","1439-4421"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.title","\"Es waren Kreativität und Umdenken erforderlich.\" Auswirkungen der COVID-19 Pandemie auf die spezialisierte ambulante Palliativversorgung (SAPV)"],["dc.title.alternative","\"Creativity and a Mindset Shift were Essential.\" Impact of the COVID-19 Pandemic on Specialized Palliative Home: A Nationwide Online Survey]"],["dc.title.subtitle","Eine bundesweite Onlinebefragung"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.subtype","original_ja"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","e0260767"],["dc.bibliographiccitation.issue","12"],["dc.bibliographiccitation.journal","PLoS One"],["dc.bibliographiccitation.volume","16"],["dc.contributor.author","Jansky, Maximiliane Katharina"],["dc.contributor.author","Schade, Franziska"],["dc.contributor.author","Rieder, Nicola"],["dc.contributor.author","Lohrmann, Danica"],["dc.contributor.author","Gebel, Cordula"],["dc.contributor.author","Kloppenburg, Lars"],["dc.contributor.author","Wedding, Ulrich"],["dc.contributor.author","Simon, Steffen T"],["dc.contributor.author","Bausewein, Claudia"],["dc.contributor.author","Nauck, Friedemann"],["dc.date.accessioned","2022-03-07T07:26:36Z"],["dc.date.available","2022-03-07T07:26:36Z"],["dc.date.issued","2021"],["dc.description.abstract","The COVID-19 pandemic has affected health care systems worldwide. Multidisciplinary teams provide specialist palliative home care (SPHC) for patients with incurable, severe, progressive diseases. These patients are at the same time at high risk, if infected, highly constricted by containment measures, and dependent on support."],["dc.description.sponsorship","Open-Access-Publikationsfonds 2022"],["dc.identifier.doi","10.1371/journal.pone.0260767"],["dc.identifier.pmid","34910741"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/104372"],["dc.language.iso","en"],["dc.relation.eissn","1932-6203"],["dc.relation.issn","1932-6203"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.rights","CC BY 4.0"],["dc.title","'It felt like a black hole, great uncertainty, but we have to take care for our patients'-Qualitative findings on the effects of the COVID-19 pandemic on specialist palliative home care"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.subtype","original_ja"],["dc.type.version","unpublished"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.artnumber","12"],["dc.bibliographiccitation.issue","1"],["dc.bibliographiccitation.journal","BMC Palliative Care"],["dc.bibliographiccitation.volume","18"],["dc.contributor.author","Freytag, Antje"],["dc.contributor.author","Krause, Markus"],["dc.contributor.author","Bauer, Anna"],["dc.contributor.author","Ditscheid, Bianka"],["dc.contributor.author","Jansky, Maximiliane"],["dc.contributor.author","Krauss, Sabine"],["dc.contributor.author","Lehmann, Thomas"],["dc.contributor.author","Marschall, Ursula"],["dc.contributor.author","Nauck, Friedemann"],["dc.contributor.author","Schneider, Werner"],["dc.contributor.author","Stichling, Kathleen"],["dc.contributor.author","Vollmar, Horst C"],["dc.contributor.author","Wedding, Ulrich"],["dc.contributor.author","Meißner, Winfried"],["dc.date.accessioned","2019-07-09T11:49:53Z"],["dc.date.available","2019-07-09T11:49:53Z"],["dc.date.issued","2019"],["dc.description.abstract","Abstract Background Since 2007, the German statutory health insurance covers Specialized Outpatient Palliative Care (SAPV). SAPV offers team-based home care for patients with advanced and progressive disease, complex symptoms and life expectancy limited to days, weeks or months. The introduction of SAPV is ruled by a directive (SAPV directive). Within this regulation, SAPV delivery models can and do differ regarding team structures, financing models, cooperation with other care professionals and processes of care. The research project SAVOIR is funded by G-BA’s German Innovations Fund to evaluate the implementation of the SAPV directive. Methods The processes, content and quality of SAPV will be evaluated from the perspectives of patients, SAPV teams, general practitioners and other care givers and payers. The influence of different contracts, team and network structures and regional and geographic settings on processes and results including patient-reported outcomes will be analyzed in five subprojects: [1] structural characteristics of SAPV and their impact on patient care, [2] quality of care from the perspective of patients, [3] quality of care from the perspective of SAPV teams, hospices, ambulatory nursing services, nursing homes and other care givers, content and extent of care from [4] the perspective of General Practitioners and [5] from the perspective of payers. The evaluation will be based on different types of data: team and organizational structures, treatment data based on routine documentation with electronic medical record systems, prospective assessment of patient-reported outcomes in a sample of SAPV teams, qualitative interviews with other stakeholders like nursing and hospice services, a survey in general practitioners and a retrospective analysis of claims data of all SAPV patients, covered by the health insurance fund BARMER in 2016. Discussion Data analysis will allow identification of variables, associated with quality of SAPV. Based on these findings, the SAVOIR study group will develop recommendations for the Federal Joint Committee for a revision of the SAPV directive. Trial registration German Clinical Trials Register (DRKS): DRKS00013949 (retrospectively registered, 14.03.2018), DRKS00014726 (14.05.2018), DRKS00014730 (30.05.2018). Subproject 3 is an interview study with professional caregivers and therefore not registered in DRKS as a clinical study."],["dc.identifier.doi","10.1186/s12904-019-0398-5"],["dc.identifier.purl","https://resolver.sub.uni-goettingen.de/purl?gs-1/15800"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/59650"],["dc.language.iso","en"],["dc.notes.intern","Merged from goescholar"],["dc.publisher","BioMed Central"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.rights","CC BY 3.0"],["dc.rights.uri","https://creativecommons.org/licenses/by/3.0"],["dc.title","Study protocol for a multi-methods study: SAVOIR - evaluation of specialized outpatient palliative care (SAPV) in Germany: outcomes, interactions, regional differences"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]