Now showing 1 - 6 of 6
  • 2022-05-23Journal Article Erratum
    [["dc.bibliographiccitation.artnumber","188"],["dc.bibliographiccitation.issue","1"],["dc.bibliographiccitation.journal","BMC Neurology"],["dc.bibliographiccitation.volume","22"],["dc.contributor.author","Salzmann, Laura"],["dc.contributor.author","Alt-Epping, Bernd"],["dc.contributor.author","Simon, Alfred"],["dc.date.accessioned","2022-06-01T09:39:41Z"],["dc.date.accessioned","2022-08-18T12:35:32Z"],["dc.date.available","2022-06-01T09:39:41Z"],["dc.date.available","2022-08-18T12:35:32Z"],["dc.date.issued","2022-05-23"],["dc.date.updated","2022-07-29T12:07:19Z"],["dc.identifier.citation","BMC Neurology. 2022 May 23;22(1):188"],["dc.identifier.doi","10.1186/s12883-022-02718-x"],["dc.identifier.pii","2718"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/108537"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/112941"],["dc.language.iso","en"],["dc.notes.intern","DOI-Import GROB-572"],["dc.publisher","BioMed Central"],["dc.relation.eissn","1471-2377"],["dc.relation.iserratumof","/handle/2/108536"],["dc.rights.holder","The Author(s)"],["dc.rights.uri","https://creativecommons.org/licenses/by/4.0"],["dc.title","Correction: Palliative sedation in amyotrophic lateral sclerosis: results of a nationwide survey among neurologists and palliative care practitioners in Germany"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.subtype","erratum_ja"],["dspace.entity.type","Publication"]]
    Details DOI
  • 2011Conference Abstract
    [["dc.bibliographiccitation.journal","Onkologie"],["dc.bibliographiccitation.volume","34"],["dc.contributor.author","Alt-Epping, Bernd"],["dc.contributor.author","Marx, G."],["dc.contributor.author","Janski, M."],["dc.contributor.author","Simon, Alfred"],["dc.contributor.author","Nauck, F."],["dc.date.accessioned","2018-11-07T08:52:22Z"],["dc.date.available","2018-11-07T08:52:22Z"],["dc.date.issued","2011"],["dc.format.extent","291"],["dc.identifier.isi","000295160600781"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/22147"],["dc.notes.status","zu prüfen"],["dc.notes.submitter","Najko"],["dc.publisher","Karger"],["dc.publisher.place","Basel"],["dc.relation.issn","0378-584X"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.title","Implementing ethics consultation at a university hospital - what do staff members expect, desire or object?"],["dc.type","conference_abstract"],["dc.type.internalPublication","yes"],["dc.type.peerReviewed","yes"],["dc.type.status","published"],["dspace.entity.type","Publication"]]
    Details WOS
  • 2021-06-04Journal Article Research Paper
    [["dc.bibliographiccitation.artnumber","216"],["dc.bibliographiccitation.issue","1"],["dc.bibliographiccitation.journal","BMC Neurology"],["dc.bibliographiccitation.volume","21"],["dc.contributor.author","Ilse, Benjamin"],["dc.contributor.author","Alt-Epping, Bernd"],["dc.contributor.author","Günther, Albrecht"],["dc.contributor.author","Liman, Jan"],["dc.contributor.author","Simon, Alfred"],["dc.date.accessioned","2021-11-25T11:00:22Z"],["dc.date.available","2021-11-25T11:00:22Z"],["dc.date.issued","2021-06-04"],["dc.date.updated","2021-11-19T12:47:30Z"],["dc.description.abstract","Abstract Background The concept of clinical ethics consultation (CECs) was implemented to provide support in ethical controversies in clinical settings and are offered in at least every second hospital in Germany. Neurological disorders often require complex decision-making. The aims of this study were to determine which situations lead to CEC in neurology and to investigate the influence of the individual patient’s wishes on the recommendation. Methods Standardised CEC protocols in the years 2011 to 2017 at the University Hospitals of Goettingen and Jena were retrospectively surveyed. The contents were categorised along existing protocol templates of CEC scenarios and subsequently paraphrased and reduced to significant meanings. Results 27 CEC scenarios which were facilitated by various professional disciplines were reviewed. Stroke was the most frequent underlying condition. Nearly all patients were not able to consent. Mostly, the relatives acted as representatives or health advocates. In 67 % of cases, a sense of conflict triggered a CEC; in 33 % a sense of uncertainty was the reason for the CEC request. In 21 CEC scenarios, a recommendation was reached in consensus with all parties involved. In 59 % of cases, a decision was made to continue medical therapy. In seven cases, the patient’s wishes led to a limitation of therapy, while in just two cases this decision was made primarily relying on the patient’s best interest. In only 13 % of cases, a valid advance directive led to respective therapeutic consequences. Conclusions CEC is feasible for consensus-finding not only in conflicts, but also in situations of therapeutic uncertainty in neurology. There is a special importance of the patient’s wishes in decision-making in neurology. However, only in a few cases were advance directives precise and specific enough to have sufficient and decisive weight in therapeutic decision-making."],["dc.description.sponsorship","Open-Access-Publikationsfonds 2021"],["dc.identifier.citation","BMC Neurology. 2021 Jun 04;21(1):216"],["dc.identifier.doi","10.1186/s12883-021-02244-2"],["dc.identifier.pii","2244"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/93520"],["dc.language.iso","en"],["dc.notes.intern","DOI Import DOI-Import GROB-441"],["dc.publisher","BioMed Central"],["dc.relation.eissn","1471-2377"],["dc.rights","CC BY 4.0"],["dc.rights.holder","The Author(s)"],["dc.subject","Clinical decision-making"],["dc.subject","Clinical ethics consultation (CEC)"],["dc.subject","Neurology"],["dc.subject","Individual patient will"],["dc.title","Clinical Ethics Consultation in Neurology – a case series"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.subtype","original_ja"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]
    Details DOI
  • 2022Journal Article Research Paper
    [["dc.bibliographiccitation.artnumber","161"],["dc.bibliographiccitation.issue","1"],["dc.bibliographiccitation.journal","BMC Neurology"],["dc.bibliographiccitation.volume","22"],["dc.contributor.author","Salzmann, Laura"],["dc.contributor.author","Alt-Epping, Bernd"],["dc.contributor.author","Simon, Alfred"],["dc.date.accessioned","2022-06-01T09:39:41Z"],["dc.date.available","2022-06-01T09:39:41Z"],["dc.date.issued","2022"],["dc.date.updated","2022-07-29T12:07:18Z"],["dc.description.abstract","Background Palliative sedation has become widely accepted as a method to alleviate refractory symptoms in terminally ill patients. Controversies regarding this topic especially concern the use of palliative sedation for psychological symptoms, the use in patients who are not imminently dying and the simultaneous withdrawal of life-sustaining measures. Amyotrophic lateral sclerosis (ALS) is characterized by symptoms including muscle weakness, dysphagia, dysarthria, muscle spasms and progressive respiratory insufficiency. Due to these characteristic symptoms, palliative sedation might be considered to be necessary to alleviate refractory suffering in ALS patients. However, palliative sedation in ALS is only rarely discussed in current medical literature and guidelines. Methods A questionnaire survey was conducted among neurologists and palliative care practitioners in Germany. The participants were asked to evaluate the use of palliative sedation in different situations. Results Two hundred and ninety-six completed questionnaires were analyzed. The results suggest high levels of support for the use of palliative sedation in ALS patients. 42% of the participants stated that they had already used palliative sedation in the treatment of ALS patients. Acceptance of palliative sedation was higher in case of physical symptoms than in case of psychological symptoms. Refusal of artificial nutrition did not lead to a lower acceptance of palliative sedation. Doctors with specialist training in palliative care had already used palliative sedation in ALS patients more often and they were more likely to accept palliative sedation in different situations than the participants without a background in palliative care. Conclusion Our survey showed that palliative sedation in ALS is widely accepted by the attending doctors. In case of psychological symptoms, palliative sedation is looked at with more concern than in case of physical symptoms. The refusal of artificial nutrition does not result in a decreased acceptance of palliative sedation. Doctors with specialist training in palliative care are more likely to approve of palliative sedation in ALS."],["dc.description.sponsorship","Open-Access-Publikationsfonds 2022"],["dc.identifier.citation","BMC Neurology. 2022 Apr 30;22(1):161"],["dc.identifier.doi","10.1186/s12883-022-02681-7"],["dc.identifier.pii","2681"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/108536"],["dc.language.iso","en"],["dc.notes.intern","DOI-Import GROB-572"],["dc.relation.eissn","1471-2377"],["dc.rights","CC BY 4.0"],["dc.rights.holder","The Author(s)"],["dc.rights.uri","https://creativecommons.org/licenses/by/4.0"],["dc.subject","Palliative sedation"],["dc.subject","Amyotrophic lateral sclerosis (ALS)"],["dc.subject","Palliative care"],["dc.title","Palliative sedation in amyotrophic lateral sclerosis: results of a nationwide survey among neurologists and palliative care practitioners in Germany"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.subtype","original_ja"],["dspace.entity.type","Publication"]]
    Details DOI
  • 2020Journal Article
    [["dc.bibliographiccitation.firstpage","81"],["dc.bibliographiccitation.issue","02"],["dc.bibliographiccitation.journal","Zeitschrift für Palliativmedizin"],["dc.bibliographiccitation.lastpage","93"],["dc.bibliographiccitation.volume","21"],["dc.contributor.author","Alt-Epping, Bernd"],["dc.contributor.author","Bausewein, Claudia"],["dc.contributor.author","Voltz, Raymond"],["dc.contributor.author","Simon, Steffen T."],["dc.contributor.author","Pralong, Anne"],["dc.contributor.author","Simon, Alfred"],["dc.date.accessioned","2020-12-10T18:12:03Z"],["dc.date.available","2020-12-10T18:12:03Z"],["dc.date.issued","2020"],["dc.identifier.doi","10.1055/a-0661-3487"],["dc.identifier.eissn","1615-293X"],["dc.identifier.issn","1615-2921"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/74233"],["dc.language.iso","de"],["dc.notes.intern","DOI Import GROB-354"],["dc.title","Therapiezielfindung und Kriterien der Entscheidungsfindung"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dspace.entity.type","Publication"]]
    Details DOI
  • 2010Review
    [["dc.bibliographiccitation.firstpage","2083"],["dc.bibliographiccitation.issue","42"],["dc.bibliographiccitation.journal","DMW - Deutsche Medizinische Wochenschrift"],["dc.bibliographiccitation.lastpage","2087"],["dc.bibliographiccitation.volume","135"],["dc.contributor.author","Alt-Epping, Bernd"],["dc.contributor.author","Simon, Alfred"],["dc.contributor.author","Nauck, F."],["dc.date.accessioned","2018-11-07T08:38:20Z"],["dc.date.available","2018-11-07T08:38:20Z"],["dc.date.issued","2010"],["dc.identifier.doi","10.1055/s-0030-1267488"],["dc.identifier.isi","000282879300004"],["dc.identifier.pmid","20941683"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/18745"],["dc.notes.status","zu prüfen"],["dc.notes.submitter","Najko"],["dc.publisher","Georg Thieme Verlag Kg"],["dc.relation.issn","0012-0472"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.title","Blood product substitution in palliative care - an ethical reflection"],["dc.type","review"],["dc.type.internalPublication","yes"],["dc.type.peerReviewed","yes"],["dc.type.status","published"],["dspace.entity.type","Publication"]]
    Details DOI PMID PMC WOS