Marx, Gabriella

[["dc.bibliographiccitation.firstpage","201"],["dc.bibliographiccitation.issue","3"],["dc.bibliographiccitation.journal","American Journal of Hospice & Palliative Medicine"],["dc.bibliographiccitation.lastpage","213"],["dc.bibliographiccitation.volume","37"],["dc.contributor.author","Oechsle, Karin"],["dc.contributor.author","Ullrich, Anneke"],["dc.contributor.author","Marx, Gabriella"],["dc.contributor.author","Benze, Gesine"],["dc.contributor.author","Wowretzko, Feline"],["dc.contributor.author","Zhang, Youyou"],["dc.contributor.author","Dickel, Lisa-Marie"],["dc.contributor.author","Heine, Julia"],["dc.contributor.author","Wendt, Kim Nikola"],["dc.contributor.author","Nauck, Friedemann"],["dc.contributor.author","Bokemeyer, Carsten"],["dc.contributor.author","Bergelt, Corinna"],["dc.date.accessioned","2020-12-10T18:38:29Z"],["dc.date.available","2020-12-10T18:38:29Z"],["dc.date.issued","2019"],["dc.identifier.doi","10.1177/1049909119872755"],["dc.identifier.eissn","1938-2715"],["dc.identifier.issn","1049-9091"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/77341"],["dc.language.iso","en"],["dc.notes.intern","DOI Import GROB-354"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.title","Prevalence and Predictors of Distress, Anxiety, Depression, and Quality of Life in Bereaved Family Caregivers of Patients With Advanced Cancer"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","394"],["dc.bibliographiccitation.issue","4"],["dc.bibliographiccitation.journal","Current Opinion in Supportive and Palliative Care"],["dc.bibliographiccitation.lastpage","398"],["dc.bibliographiccitation.volume","8"],["dc.contributor.author","Marx, Gabriella"],["dc.contributor.author","Boakye, Sonja Owusu"],["dc.contributor.author","Jung, Antje"],["dc.contributor.author","Nauck, Friedemann"],["dc.date.accessioned","2018-11-07T09:32:17Z"],["dc.date.available","2018-11-07T09:32:17Z"],["dc.date.issued","2014"],["dc.description.abstract","Purpose of review Patients' autonomy is seen as a major issue in modern medicine but requires the ability to understand and rate an issue without being influenced by others. However, near the end of life, patients often decide considering the consequences for their relatives. Recent findings Our study results and recent literature suggest that existing relational patterns determine experiences, family dynamics, and decision-making processes at the end of life. Relatives as a resource can promote patients' autonomy. In doubt of the patients' judgment or prioritizing their own needs, relatives can undermine patient's autonomy in a paternalistic way. Trust in others should be seen as a reciprocal process. Summary With respect to the patient's autonomy, healthcare providers need to consider the family structure and its relations."],["dc.description.sponsorship","Volkswagen Foundation"],["dc.identifier.doi","10.1097/SPC.0000000000000096"],["dc.identifier.isi","000344737500014"],["dc.identifier.pmid","25232680"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/31723"],["dc.notes.status","zu prüfen"],["dc.notes.submitter","Najko"],["dc.publisher","Lippincott Williams & Wilkins"],["dc.relation.issn","1751-4266"],["dc.relation.issn","1751-4258"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.title","Trust and autonomy in end of life: considering the interrelation between patients and their relatives"],["dc.type","review"],["dc.type.internalPublication","yes"],["dc.type.peerReviewed","yes"],["dc.type.status","published"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","1"],["dc.bibliographiccitation.issue","05"],["dc.bibliographiccitation.journal","Zeitschrift für Palliativmedizin"],["dc.bibliographiccitation.lastpage","59"],["dc.bibliographiccitation.volume","17"],["dc.contributor.author","Isermeyer, Leonie"],["dc.contributor.author","Ilse, Benjamin"],["dc.contributor.author","Marx, Gabriella"],["dc.contributor.author","Seidemann, S"],["dc.contributor.author","Jünger, J"],["dc.contributor.author","Nauck, Friedemann"],["dc.contributor.author","Alt-Epping, Bernd"],["dc.date.accessioned","2022-03-07T07:26:21Z"],["dc.date.available","2022-03-07T07:26:21Z"],["dc.date.issued","2016"],["dc.identifier.doi","10.1055/s-0036-1594125"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/104369"],["dc.language.iso","de"],["dc.relation.issn","1615-2921"],["dc.relation.issn","1615-293X"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.title","Förderliche und hinderliche Faktoren bei der Implementierung des Querschnittsbereich 13 Palliativmedizin (Q13)"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.subtype","original_ja"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.journal","Onkologie"],["dc.bibliographiccitation.volume","34"],["dc.contributor.author","Alt-Epping, Bernd"],["dc.contributor.author","Marx, G."],["dc.contributor.author","Janski, M."],["dc.contributor.author","Simon, Alfred"],["dc.contributor.author","Nauck, F."],["dc.date.accessioned","2018-11-07T08:52:22Z"],["dc.date.available","2018-11-07T08:52:22Z"],["dc.date.issued","2011"],["dc.format.extent","291"],["dc.identifier.isi","000295160600781"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/22147"],["dc.notes.status","zu prüfen"],["dc.notes.submitter","Najko"],["dc.publisher","Karger"],["dc.publisher.place","Basel"],["dc.relation.issn","0378-584X"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.title","Implementing ethics consultation at a university hospital - what do staff members expect, desire or object?"],["dc.type","conference_abstract"],["dc.type.internalPublication","yes"],["dc.type.peerReviewed","yes"],["dc.type.status","published"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","1303"],["dc.bibliographiccitation.issue","3"],["dc.bibliographiccitation.journal","Supportive Care in Cancer"],["dc.bibliographiccitation.lastpage","1315"],["dc.bibliographiccitation.volume","29"],["dc.contributor.author","Ullrich, Anneke"],["dc.contributor.author","Marx, Gabriella"],["dc.contributor.author","Bergelt, Corinna"],["dc.contributor.author","Benze, Gesine"],["dc.contributor.author","Zhang, Youyou"],["dc.contributor.author","Wowretzko, Feline"],["dc.contributor.author","Heine, Julia"],["dc.contributor.author","Dickel, Lisa-Marie"],["dc.contributor.author","Nauck, Friedemann"],["dc.contributor.author","Bokemeyer, Carsten"],["dc.contributor.author","Oechsle, Karin"],["dc.date.accessioned","2021-04-14T08:24:43Z"],["dc.date.available","2021-04-14T08:24:43Z"],["dc.date.issued","2020"],["dc.identifier.doi","10.1007/s00520-020-05565-z"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/81401"],["dc.language.iso","en"],["dc.notes.intern","DOI Import GROB-399"],["dc.relation.eissn","1433-7339"],["dc.relation.issn","0941-4355"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.title","Supportive care needs and service use during palliative care in family caregivers of patients with advanced cancer: a prospective longitudinal study"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","e22"],["dc.bibliographiccitation.issue","04"],["dc.bibliographiccitation.journal","Deutsche medizinische Wochenschrift"],["dc.bibliographiccitation.lastpage","e28"],["dc.bibliographiccitation.volume","146"],["dc.contributor.author","Banse, Christian"],["dc.contributor.author","Owusu-Boakye, Sonja"],["dc.contributor.author","Schade, Franziska"],["dc.contributor.author","Jansky, Maximiliane"],["dc.contributor.author","Marx, Gabriella"],["dc.contributor.author","Nauck, Friedemann"],["dc.date.accessioned","2021-04-14T08:26:18Z"],["dc.date.available","2021-04-14T08:26:18Z"],["dc.date.issued","2021"],["dc.identifier.doi","10.1055/a-1263-3437"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/81894"],["dc.language.iso","de"],["dc.notes.intern","DOI Import GROB-399"],["dc.relation.eissn","1439-4413"],["dc.relation.issn","0012-0472"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.title","Der Migrationshintergrund als Grenze der Palliativversorgung am Lebensende?"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","2098"],["dc.bibliographiccitation.issue","7-8"],["dc.bibliographiccitation.journal","Nursing Ethics"],["dc.bibliographiccitation.lastpage","2112"],["dc.bibliographiccitation.volume","26"],["dc.contributor.author","Scherer, Anika"],["dc.contributor.author","Alt-Epping, Bernd"],["dc.contributor.author","Nauck, Friedemann"],["dc.contributor.author","Marx, Gabriella"],["dc.date.accessioned","2020-12-10T18:38:29Z"],["dc.date.available","2020-12-10T18:38:29Z"],["dc.date.issued","2019"],["dc.identifier.doi","10.1177/0969733019829857"],["dc.identifier.eissn","1477-0989"],["dc.identifier.issn","0969-7330"],["dc.identifier.purl","https://resolver.sub.uni-goettingen.de/purl?gs-1/16842"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/77338"],["dc.language.iso","en"],["dc.notes.intern","DOI Import GROB-354"],["dc.notes.intern","Merged from goescholar"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.rights","CC BY-NC 4.0"],["dc.rights.uri","https://creativecommons.org/licenses/by-nc/4.0"],["dc.title","Team members perspectives on conflicts in clinical ethics committees"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","152"],["dc.bibliographiccitation.issue","03"],["dc.bibliographiccitation.journal","Zeitschrift für Palliativmedizin"],["dc.bibliographiccitation.lastpage","160"],["dc.bibliographiccitation.volume","18"],["dc.contributor.author","Jütte, R."],["dc.contributor.author","Jansky, Maximiliane Katharina"],["dc.contributor.author","Marx, Gabriella"],["dc.contributor.author","Nauck, Friedemann"],["dc.contributor.author","Radnai, B."],["dc.contributor.author","Alt-Epping, Bernd"],["dc.date.accessioned","2022-02-21T12:35:44Z"],["dc.date.available","2022-02-21T12:35:44Z"],["dc.date.issued","2017"],["dc.description.abstract","Hintergrund Die durchschnittliche Lebenserwartung von Menschen mit schwerer geistiger oder körperlicher Behinderung gleicht sich in den letzten Jahrzehnten der Lebenserwartung der Gesamtbevölkerung an. Dadurch gewinnt die Palliativversorgung dieser vulnerablen Patientengruppe zunehmend an Bedeutung. Vor diesem Hintergrund wurde ein Curriculum zur Inhouse-Schulung palliativer Behandlung und Begleitung von Menschen mit Behinderung in einer Wohngruppe entwickelt, implementiert und evaluiert. Methode Vor (t1) und 6 Monate (t2) nach zehn Inhouse-Schulungsterminen à 90 Minuten wurde neben der Erfassung teilnehmerbezogener Daten der Lernzuwachs mittels Fragebögen mit offenen und geschlossenen Fragen erfasst. Themenschwerpunkte waren: Umgang mit Sterbe- und anderen belastenden Situationen, Herausforderungen im Berufsalltag und versorgungsbezogene Sicherheit. Die Angaben wurden deskriptiv statistisch und inhaltsanalytisch analysiert. Ergebnisse An der Schulung nahmen 16 Mitarbeiter teil; 14 füllten den Bogen zum Zeitpunkt t1 aus, von 9 Befragungsteilnehmern konnten t1- und t2-Angaben gewonnen werden. Schulungskonzept, Durchführung und mittelfristige Auswirkungen wurden dabei durchgehend positiv evaluiert; die Mitarbeiter gewannen in der Betreuung sterbender Bewohner und bei der Erfassung und Behandlung von belastenden Symptomen an Handlungssicherheit. Schlussfolgerung Ein Grundverständnis palliativen Handelns kann in Form einer Inhouse-Schulung alltagskonform und wirkungsvoll vermittelt werden, sodass sich die Handlungssicherheit der Mitarbeiter im Umgang mit schwer kranken, sterbenden und verstorbenen Bewohnern erhöht."],["dc.description.abstract","Background Life expectancy of people suffering from complex (mental and physical) disabilities has improved over the years. Therefore, palliative care for this particularly vulnerable group of patients is gaining importance. An educational curriculum for staff caring for severely disabled people living in a specialized residential home was developed, implemented and evaluated. Methods Before (t1) and 6 months after (t2) ten in-house 90-minute lasting educational sessions, perspectives of participants and knowledge gain was assessed using open and closed questions. Coping with dying and other stressful situations, day-to-day challenges, confidence regarding different aspects of end-of-life care, and other topics were explored. Data were processed by descriptive statistics and content analysis. Results Sixteen staff members attended the course; 14 answered the first questionnaire (t1). Follow-up data (t1 and t2) were available from 9 participants. Curricular aspects, performance and medium-term implications were evaluated as positive. Staff members described a gain in confidence in caring for dying residents and in assessing and relieving burdensome symptoms. Conclusions The in-house curriculum was shown to be a feasible and effective educational format to help staff gain palliative care competence, and to strengthen knowledge and confidence in caring for severely affected and dying patients with complex disabilities."],["dc.identifier.doi","10.1055/s-0043-103472"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/100143"],["dc.language.iso","de"],["dc.relation.issn","1615-2921"],["dc.relation.issn","1615-293X"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.title","Implementierung von Palliative Care in einer Wohngruppe für schwerstkranke Menschen mit Behinderung – Konzeption und Evaluation einer Inhouse-Schulung"],["dc.title.alternative","Palliative Care for Patients with Complex Disabilities – Concept and Evaluation of an Inhouse Curriculum"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.subtype","original_ja"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","101"],["dc.bibliographiccitation.lastpage","132"],["dc.contributor.author","Owusu-Boakye, Sonja"],["dc.contributor.author","Nauck, Friedemann"],["dc.contributor.author","Alt-Epping, Bernd"],["dc.contributor.author","Marx, Gabriella"],["dc.contributor.editor","Steinfath, Holmer"],["dc.contributor.editor","Wiesemann, Claudia"],["dc.date.accessioned","2022-04-25T05:56:38Z"],["dc.date.available","2022-04-25T05:56:38Z"],["dc.date.issued","2016"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/106609"],["dc.language.iso","de"],["dc.publisher","Springer VS"],["dc.publisher.place","Wiesbaden"],["dc.relation.ispartof","Autonomie und Vetrauen. Schlüsselbegriffe der modernen Medizin"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.title","Selbstbestimmung braucht Vertrauen - Entscheidungsfindung am Lebensende"],["dc.type","book_chapter"],["dc.type.internalPublication","yes"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","143"],["dc.bibliographiccitation.issue","03"],["dc.bibliographiccitation.journal","Zeitschrift für Palliativmedizin"],["dc.bibliographiccitation.lastpage","151"],["dc.bibliographiccitation.volume","23"],["dc.contributor.author","Heiß, Kathrin"],["dc.contributor.author","Jansky, Maximiliane Katharina"],["dc.contributor.author","Jaspers, Birgit"],["dc.contributor.author","Marx, Gabriella"],["dc.contributor.author","Schade, Franziska"],["dc.contributor.author","Nauck, Friedemann"],["dc.contributor.author","Banse, Christian"],["dc.date.accessioned","2022-07-12T11:21:01Z"],["dc.date.available","2022-07-12T11:21:01Z"],["dc.date.issued","2022"],["dc.identifier.doi","10.1055/a-1713-2425"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/112478"],["dc.language.iso","de"],["dc.relation.doi","10.1055/a-1713-2425"],["dc.relation.issn","1615-2921"],["dc.relation.issn","1615-293X"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.title","Kooperation und Konkurrenz – Eine Befragung ambulanter Hospizdienste zur Zusammenarbeit mit der SAPV"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.subtype","original_ja"],["dspace.entity.type","Publication"]]