Schicktanz, Silke

[["dc.bibliographiccitation.issue","1"],["dc.bibliographiccitation.journal","BMC Medical Ethics"],["dc.bibliographiccitation.volume","21"],["dc.contributor.author","Alpinar-Sencan, Zümrüt"],["dc.contributor.author","Schicktanz, Silke"],["dc.date.accessioned","2020-12-10T18:38:57Z"],["dc.date.available","2020-12-10T18:38:57Z"],["dc.date.issued","2020"],["dc.identifier.doi","10.1186/s12910-020-00476-4"],["dc.identifier.eissn","1472-6939"],["dc.identifier.purl","https://resolver.sub.uni-goettingen.de/purl?gs-1/17314"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/77491"],["dc.language.iso","en"],["dc.notes.intern","DOI Import GROB-354"],["dc.notes.intern","Merged from goescholar"],["dc.rights","CC BY 4.0"],["dc.rights.uri","https://creativecommons.org/licenses/by/4.0"],["dc.title","Addressing ethical challenges of disclosure in dementia prediction: limitations of current guidelines and suggestions to proceed"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","n/a"],["dc.bibliographiccitation.journal","Bioethics"],["dc.bibliographiccitation.lastpage","n/a"],["dc.contributor.author","Schicktanz, Silke"],["dc.contributor.author","Michl, Susanne"],["dc.contributor.author","Stoff, Heiko"],["dc.date.accessioned","2021-04-14T08:30:05Z"],["dc.date.available","2021-04-14T08:30:05Z"],["dc.date.issued","2021"],["dc.description.abstract","Abstract Slippery slope‐, taboo‐breaking‐ or Nazi‐analogy‐arguments are common, but not uncontroversial examples of the complex relationship between bioethics and the various ways of using historical arguments in these debates. In our analysis we examine first the relationship between bioethics and medical history both as separate disciplines and as argumentative practices. Secondly, we then analyse six common types of historical arguments in bioethics (slippery slope‐, analogy‐, continuity‐, knockout/taboo‐, ethical progress‐ and accomplice‐arguments), some as arguments within the academic debate of bioethics, others as arguments within political and public debates over bioethical issues. We conclude by suggesting to bioethicists to better understand historical arguments as socially and culturally embedded practices of critical reflection of power, medical and government paternalism and possible future scenarios. More interdisciplinarity between ethicists and medical historians is needed to appropriately rationalize and understand the different legacies."],["dc.description.sponsorship","Bundesministerium für Bildung und Forschung http://dx.doi.org/10.13039/501100002347"],["dc.description.sponsorship","Ministry of Education http://dx.doi.org/10.13039/100009950"],["dc.identifier.doi","10.1111/bioe.12841"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/83102"],["dc.language.iso","en"],["dc.notes.intern","DOI Import GROB-399"],["dc.relation.eissn","1467-8519"],["dc.relation.issn","0269-9702"],["dc.rights","This is an open access article under the terms of the Creative Commons Attribution‐NonCommercial‐NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made."],["dc.title","Bioethics and the argumentative legacy of atrocities in medical history: Reflections on a complex relationship"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","205395172210926"],["dc.bibliographiccitation.issue","1"],["dc.bibliographiccitation.journal","Big Data & Society"],["dc.bibliographiccitation.volume","9"],["dc.contributor.author","Buhr, Lorina"],["dc.contributor.author","Schicktanz, Silke"],["dc.date.accessioned","2022-06-01T09:39:40Z"],["dc.date.available","2022-06-01T09:39:40Z"],["dc.date.issued","2022"],["dc.description.abstract","Healthcare provision, like many other sectors of society, is undergoing major changes due to the increased use of data-driven methods and technologies. This increased reliance on big data in medicine can lead to shifts in the norms that guide healthcare providers and patients. Continuous critical normative reflection is called for to track such potential changes. This article presents the results of an interview-based study with 20 German and Swiss experts from the fields of medicine, life science research, informatics and humanities of digitalisation. The aim of the study was to explore expert opinions regarding current challenges and opportunities related to data-driven medicine and medical research and to provide a methodological framework for empirically grounded, continuous normative reflection. To this end, we developed a heuristic tool to map and structure empirical findings for normative analysis. Using this tool, our interview material points to a polarisation between individualistic and collectivistic orientated argumentations among experts. The study shows that a multilevel analysis is required to deal with complex normative implications of data-driven approaches in medical research and healthcare."],["dc.description.sponsorship","Open-Access-Publikationsfonds 2022"],["dc.description.sponsorship","HiGHmed consortium funded by the Bundesministerium für Bildung und Forschung"],["dc.identifier.doi","10.1177/20539517221092653"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/108531"],["dc.language.iso","en"],["dc.notes.intern","DOI-Import GROB-572"],["dc.relation.eissn","2053-9517"],["dc.relation.issn","2053-9517"],["dc.rights","CC BY 4.0"],["dc.rights.uri","https://creativecommons.org/licenses/by/4.0/"],["dc.title","Individual benefits and collective challenges: Experts’ views on data-driven approaches in medical research and healthcare in the German context"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.subtype","original_ja"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","861"],["dc.bibliographiccitation.issue","11"],["dc.bibliographiccitation.journal","Journal of Medical Ethics"],["dc.bibliographiccitation.lastpage","867"],["dc.bibliographiccitation.volume","48"],["dc.contributor.affiliation","Alpinar-Sencan, Zümrüt; \r\n1\r\nDepartment for Medical Ethics and History of Medicine, University Medical Center Göttingen, Göttingen, Niedersachsen, Germany"],["dc.contributor.affiliation","Schicktanz, Silke; \r\n1\r\nDepartment for Medical Ethics and History of Medicine, University Medical Center Göttingen, Göttingen, Niedersachsen, Germany"],["dc.contributor.affiliation","Ulitsa, Natalie; \r\n2\r\nDepartment of Community Mental Health, University of Haifa, Haifa, Israel"],["dc.contributor.affiliation","Shefet, Daphna; \r\n3\r\nShalvata Mental Health Care Center, Faculty of Medicine, Tel Aviv University, Tel Aviv, Israel"],["dc.contributor.affiliation","Werner, Perla; \r\n2\r\nDepartment of Community Mental Health, University of Haifa, Haifa, Israel"],["dc.contributor.author","Alpinar-Sencan, Zümrüt"],["dc.contributor.author","Schicktanz, Silke"],["dc.contributor.author","Ulitsa, Natalie"],["dc.contributor.author","Shefet, Daphna"],["dc.contributor.author","Werner, Perla"],["dc.date.accessioned","2021-08-12T07:45:28Z"],["dc.date.available","2021-08-12T07:45:28Z"],["dc.date.issued","2021"],["dc.date.updated","2022-11-11T13:12:28Z"],["dc.description.abstract","Recent advances in biomarkers may soon make it possible to identify persons at high risk for late-onset Alzheimer’s disease at a presymptomatic (preclinical) stage. Popular demand for testing is increasing despite the lack of cure and effective prevention options and despite uncertainties regarding the predictive value of biomarker tests. This underscores the relevance of the ethical, cultural and social implications of predictive testing and the need to advance the bioethical debate beyond considerations of clinical consequences. Our qualitative study included three groups of affected persons: People with mild neurocognitive disorder, their relatives and family caregivers of people with dementia. We explored their moral motivations regarding predictive, biomarker-based testing and preclinical diagnostics. We interviewed affected individuals in Germany and Israel (N=88; 44 participants in each country). Transcripts of 12 focus groups and 12 semistructured interviews were content analysed with a focus on the moral motivations of affected persons in their justification of why they accept or reject predictive testing and early diagnosis. We grouped the underlying aspects of moral motivation into four ethical categories: beneficence as a form of personal utility focusing on well-being, the ties of responsibility linking families and their individual members, the importance of self-determination by later life planning and notions of a good life. In general, cultural parallels among these motives were very obvious. Cultural variation occurred mainly in openness to suicide, scepticism about test validity and emphasis on personal autonomy. The study underscores the importance of counselling for life-planning issues and of informing test candidates about problems with test validity and about the ambiguity of test results."],["dc.description.abstract","Recent advances in biomarkers may soon make it possible to identify persons at high risk for late-onset Alzheimer’s disease at a presymptomatic (preclinical) stage. Popular demand for testing is increasing despite the lack of cure and effective prevention options and despite uncertainties regarding the predictive value of biomarker tests. This underscores the relevance of the ethical, cultural and social implications of predictive testing and the need to advance the bioethical debate beyond considerations of clinical consequences. Our qualitative study included three groups of affected persons: People with mild neurocognitive disorder, their relatives and family caregivers of people with dementia. We explored their moral motivations regarding predictive, biomarker-based testing and preclinical diagnostics. We interviewed affected individuals in Germany and Israel (N=88; 44 participants in each country). Transcripts of 12 focus groups and 12 semistructured interviews were content analysed with a focus on the moral motivations of affected persons in their justification of why they accept or reject predictive testing and early diagnosis. We grouped the underlying aspects of moral motivation into four ethical categories: beneficence as a form of personal utility focusing on well-being, the ties of responsibility linking families and their individual members, the importance of self-determination by later life planning and notions of a good life. In general, cultural parallels among these motives were very obvious. Cultural variation occurred mainly in openness to suicide, scepticism about test validity and emphasis on personal autonomy. The study underscores the importance of counselling for life-planning issues and of informing test candidates about problems with test validity and about the ambiguity of test results."],["dc.description.sponsorship","http://dx.doi.org/10.13039/501100001736German-Israeli Foundation for Scientific Research and Development"],["dc.identifier","34290115"],["dc.identifier.doi","10.1136/medethics-2020-106990"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/88474"],["dc.language.iso","en"],["dc.notes.intern","DOI Import GROB-448"],["dc.publisher","BMJ Publishing Group Ltd and Institute of Medical Ethics"],["dc.relation.eissn","1473-4257"],["dc.relation.issn","0306-6800"],["dc.rights.uri","http://creativecommons.org/licenses/by-nc/4.0/"],["dc.title","Moral motivation regarding dementia risk testing among affected persons in Germany and Israel"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","131"],["dc.bibliographiccitation.issue","3"],["dc.bibliographiccitation.journal","Medicine studies"],["dc.bibliographiccitation.lastpage","145"],["dc.bibliographiccitation.volume","3"],["dc.contributor.author","Schicktanz, Silke"],["dc.contributor.author","Schweda, Mark"],["dc.date.accessioned","2019-07-09T11:53:53Z"],["dc.date.available","2019-07-09T11:53:53Z"],["dc.date.issued","2012-06-01"],["dc.description.abstract","PURPOSE: Although the term \"responsibility\" plays a central role in bioethics and public health, its meaning and implications are often unclear. This paper defends the importance of a more systematic conception of responsibility to improve moral philosophical as well as descriptive analysis. METHODS: We start with a formal analysis of the relational conception of responsibility and its meta-ethical presuppositions. In a brief historical overview, we compare global-collective, professional, personal, and social responsibility. The value of our analytical matrix is illustrated by sorting out the plurality of responsibility models in three cases (organ transplantation, advance directives, and genetic testing). RESULTS: Responsibility is a relational term involving at least seven relata. The analysis of the relata allows distinguishing between individual versus collective agency, retrospective versus prospective direction, and liability versus power relations. Various bioethical ambiguities result from insufficient, implicit, or inappropriate ascriptions of responsibility. CONCLUSIONS: A systematic conception of responsibility is an important tool for bioethical reflection. It allows an in-depth understanding and critique of moral claims on a meta-ethical level without presuming one particular normative approach. Considering the concept of responsibility can also help to complement the current bioethical focus on individual autonomy by including the perspectives of other actors, such as family members or social groups."],["dc.identifier.doi","10.1007/s12376-011-0070-8"],["dc.identifier.fs","593269"],["dc.identifier.pmid","22719799"],["dc.identifier.purl","https://resolver.sub.uni-goettingen.de/purl?gs-1/8195"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/60521"],["dc.language.iso","en"],["dc.notes.intern","Merged from goescholar"],["dc.relation.issn","1876-4541"],["dc.rights","Goescholar"],["dc.rights.uri","https://goescholar.uni-goettingen.de/licenses"],["dc.title","The Diversity of Responsibility: The Value of Explication and Pluralization."],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.artnumber","921"],["dc.bibliographiccitation.journal","Frontiers in Human Neuroscience"],["dc.bibliographiccitation.volume","8"],["dc.contributor.author","Schicktanz, Silke"],["dc.contributor.author","Schweda, Mark"],["dc.contributor.author","Ballenger, Jesse F."],["dc.contributor.author","Fox, Patrick J."],["dc.contributor.author","Halpern, Jodi"],["dc.contributor.author","Kramer, Joel H."],["dc.contributor.author","Micco, Guy"],["dc.contributor.author","Post, Stephen G."],["dc.contributor.author","Thompson, Charis"],["dc.contributor.author","Knight, Robert T."],["dc.contributor.author","Jagust, William J."],["dc.date.accessioned","2018-11-07T09:32:35Z"],["dc.date.available","2018-11-07T09:32:35Z"],["dc.date.issued","2014"],["dc.description.abstract","The development of a wide array of molecular and neuroscientific biornarkers can provide the possibility to visualize the course of Alzheimer's disease (AD) at early stages. Many of these biomarkers are aimed at detecting not only a preclinical, but also a pre-symptomatic state. They are supposed to facilitate clinical trials aiming at treatments that attack the disease at its earliest stage or even prevent it The increasing number of such biomarkers currently tested and now partly proposed for clinical implementation calls for critical reflection on their aims, social benefits, and risks. This position paper summarizes major challenges and responsibilities. Its focus is on the ethical and social problems involved in the organization and application of dementia research, as well as in healthcare provision from a cross national point of view. The paper is based on a discussion of leading dementia experts from neuroscience, neurology, social sciences, and bioethics in the United States and Europe. It thus reflects a notable consensus across various disciplines and national backgrounds. We intend to initiate a debate on the need for actions within the researchers' national and international communities."],["dc.description.sponsorship","Open-Access-Publikationsfonds 2014"],["dc.identifier.doi","10.3389/fnhum.2014.00921"],["dc.identifier.isi","000345079900001"],["dc.identifier.pmid","25477802"],["dc.identifier.purl","https://resolver.sub.uni-goettingen.de/purl?gs-1/11132"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/31782"],["dc.language.iso","en"],["dc.notes.intern","Merged from goescholar"],["dc.notes.status","zu prüfen"],["dc.notes.submitter","Najko"],["dc.publisher","Frontiers Media S.A."],["dc.relation.eissn","1662-5161"],["dc.relation.issn","1662-5161"],["dc.rights","CC BY 3.0"],["dc.rights.uri","https://creativecommons.org/licenses/by/3.0"],["dc.title","Before it is too late: professional responsibilities in late-onset Alzheimer's research and pre-symptomatic prediction"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.peerReviewed","yes"],["dc.type.status","published"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.artnumber","56"],["dc.bibliographiccitation.issue","1"],["dc.bibliographiccitation.journal","BMC Medical Ethics"],["dc.bibliographiccitation.volume","19"],["dc.contributor.author","Schaper, Manuel"],["dc.contributor.author","Schicktanz, Silke"],["dc.date.accessioned","2019-07-09T11:45:31Z"],["dc.date.available","2019-07-09T11:45:31Z"],["dc.date.issued","2018"],["dc.description.abstract","Abstract Background BACKGROUND: Commercial genetic testing offered over the internet, known as direct-to-consumer genetic testing (DTC GT), currently is under ethical attack. A common critique aims at the limited validation of the tests as well as the risk of psycho-social stress or adaption of incorrect behavior by users triggered by misleading health information. Here, we examine in detail the specific role of advertising communication of DTC GT companies from a medical ethical perspective. Our argumentative analysis departs from the starting point that DTC GT operates at the intersection of two different contexts: medicine on the one hand and the market on the other. Both fields differ strongly with regard to their standards of communication practices and the underlying normative assumptions regarding autonomy and responsibility. METHODS: Following a short review of the ethical contexts of medical and commercial communication, we provide case examples for persuasive messages of DTC GT websites and briefly analyze their design with a multi-modal approach to illustrate some of their problematic implications. RESULTS: We observe three main aspects in DTC GT advertising communication: (1) the use of material suggesting medical professional legitimacy as a trust-establishing tool, (2) the suggestion of empowerment as a benefit of using DTC GT services and (3) the narrative of responsibility as a persuasive appeal to a moral self-conception. CONCLUSIONS: While strengthening and respecting the autonomy of a patient is the focus in medical communication, specifically genetic counselling, persuasive communication is the normal mode in marketing of consumer goods, presuming an autonomous, rational, independent consumer. This creates tension in the context of DTC GT regarding the expectation and normative assessment of communication strategies. Our analysis can even the ground for a better understanding of ethical problems associated with intersections of medical and commercial communication and point to perspectives of analysis of DTC GT advertising. Methods Following a short review of the ethical contexts of medical and commercial communication, we provide case examples for persuasive messages of DTC GT websites and briefly analyze their design with a multi-modal approach to illustrate some of their problematic implications. Results We observe three main aspects in DTC GT advertising communication: (1) the use of material suggesting medical professional legitimacy as a trust-establishing tool, (2) the suggestion of empowerment as a benefit of using DTC GT services and (3) the narrative of responsibility as a persuasive appeal to a moral self-conception. Conclusions While strengthening and respecting the autonomy of a patient is the focus in medical communication, specifically genetic counselling, persuasive communication is the normal mode in marketing of consumer goods, presuming an autonomous, rational, independent consumer. This creates tension in the context of DTC GT regarding the expectation and normative assessment of communication strategies. Our analysis can even the ground for a better understanding of ethical problems associated with intersections of medical and commercial communication and point to perspectives of analysis of DTC GT advertising."],["dc.identifier.doi","10.1186/s12910-018-0292-3"],["dc.identifier.pmid","29871685"],["dc.identifier.purl","https://resolver.sub.uni-goettingen.de/purl?gs-1/15235"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/59247"],["dc.language.iso","en"],["dc.notes.intern","Merged from goescholar"],["dc.publisher","BioMed Central"],["dc.rights","CC BY 4.0"],["dc.rights.uri","https://creativecommons.org/licenses/by/4.0"],["dc.title","Medicine, market and communication: ethical considerations in regard to persuasive communication in direct-to-consumer genetic testing services"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.artnumber","4"],["dc.bibliographiccitation.journal","Philosophy, ethics, and humanities in medicine : PEHM"],["dc.bibliographiccitation.volume","4"],["dc.contributor.author","Schweda, Mark"],["dc.contributor.author","Schicktanz, Silke"],["dc.date.accessioned","2019-07-09T11:52:38Z"],["dc.date.available","2019-07-09T11:52:38Z"],["dc.date.issued","2009"],["dc.description.abstract","Background: The increasing debate on financial incentives for organ donation raises concerns about a \"commodification of the human body\". Philosophical-ethical stances on this development depend on assumptions concerning the body and how people think about it. In our qualitative empirical study we analyze public attitudes towards organ donation in their specific relation to conceptions of the human body in four European countries (Cyprus, Germany, the Netherlands and Sweden). This approach aims at a more context-sensitive picture of what \"commodification of the body\" can mean in concrete clinical decisions concerning organ donation. Results: We find that moral intuitions concerning organ donation are rooted in various conceptions of the human body and its relation to the self: a) the body as a mechanical object owned by the self, b) the body as a part of a higher order embodying the self, and c) the body as a hierarchy of organs constitutive of the self. Conclusion: The language of commodification is much too simple to capture what is at stake in everyday life intuitions about organ donation and organ sale. We discuss how the plurality of underlying body-self conceptions can be taken into account in the ethical debate, pointing out consequences for an anthropologically informed approach and for a liberal perspective."],["dc.identifier.doi","10.1186/1747-5341-4-4"],["dc.identifier.pmid","19226449"],["dc.identifier.purl","https://resolver.sub.uni-goettingen.de/purl?gs-1/5812"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/60246"],["dc.language.iso","en"],["dc.notes.intern","Merged from goescholar"],["dc.relation.issn","1747-5341"],["dc.rights","Goescholar"],["dc.rights.uri","https://goescholar.uni-goettingen.de/licenses"],["dc.subject.ddc","610"],["dc.title","The \"spare parts person\"? Conceptions of the human body and their implications for public attitudes towards organ donation and organ sale."],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.artnumber","56"],["dc.bibliographiccitation.journal","BMC Medical Ethics"],["dc.bibliographiccitation.volume","15"],["dc.contributor.author","Inthorn, Julia"],["dc.contributor.author","Woehlke, Sabine"],["dc.contributor.author","Schmidt, Fabian"],["dc.contributor.author","Schicktanz, Silke"],["dc.date.accessioned","2018-11-07T09:37:47Z"],["dc.date.available","2018-11-07T09:37:47Z"],["dc.date.issued","2014"],["dc.description.abstract","Background: There is an ongoing expert debate with regard to financial incentives in order to increase organ supply. However, there is a lacuna of empirical studies on whether citizens would actually support financial incentives for organ donation. Methods: Between October 2008 and February 2009 a quantitative survey was conducted among German students of medicine and economics to gain insights into their point of view regarding living and deceased organ donation and different forms of commercialization (n = 755). Results: The average (passive) willingness to donate is 63.5% among medical students and 50.0% among students of economics (p = 0.001), while only 24.1% of the respondents were actually holding an organ donor card. 11.3% of students of economics had signed a donor card, however, the number is significantly higher among students of medicine (31.9%, p < 0.001). Women held donor cards significantly more often (28.6%) than men (19.4%, p = 0.004). The majority of students were against direct payments as incentives for deceased and living donations. Nevertheless, 37.5% of the respondents support the idea that the funeral expenses of deceased organ donors should be covered. Women voted significantly less often for the coverage of expenses than men (women 31.6%, men 44.0%, p = 0.003). The number of those in favor of allowing to sell one's organs for money (living organ donation) was highest among students of economics (p = 0.034). Conclusion: Despite a generally positive view on organ donation the respondents refuse to consent to commercialization, but are in favor of removing disincentives or are in favor of indirect models of reward."],["dc.identifier.doi","10.1186/1472-6939-15-56"],["dc.identifier.isi","000339287300001"],["dc.identifier.pmid","24996438"],["dc.identifier.purl","https://resolver.sub.uni-goettingen.de/purl?gs-1/10484"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/32920"],["dc.notes.intern","Merged from goescholar"],["dc.notes.status","zu prüfen"],["dc.notes.submitter","Najko"],["dc.publisher","Biomed Central Ltd"],["dc.relation.issn","1472-6939"],["dc.rights","CC BY 4.0"],["dc.rights.uri","https://creativecommons.org/licenses/by/4.0"],["dc.title","Impact of gender and professional education on attitudes towards financial incentives for organ donation: results of a survey among 755 students of medicine and economics in Germany"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.peerReviewed","yes"],["dc.type.status","published"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.artnumber","64"],["dc.bibliographiccitation.journal","Frontiers in systems neuroscience"],["dc.bibliographiccitation.volume","9"],["dc.contributor.author","Schicktanz, Silke"],["dc.contributor.author","Amelung, Till"],["dc.contributor.author","Rieger, Jochem W."],["dc.date.accessioned","2019-07-09T11:41:14Z"],["dc.date.available","2019-07-09T11:41:14Z"],["dc.date.issued","2015"],["dc.description.abstract","Brain-computer-interfaces (BCIs) are important for the next generation of neuro-prosthesis innovations. Only few pilot projects have tested patients' abilities to control BCIs as well as their satisfaction with the offered technologies. On the one hand, little is known about patients' moral attitudes toward the benefit-risk-ratio of BCIs as well as their needs, priorities, and expectations. On the other hand, ethics experts intensively discuss the general risks of BCIs as well as the limits of neuro-enhancement. To our knowledge, we present here the first qualitative interview study with ten chronic patients matching the potential user categories for motor and communication BCIs to assess their practical and moral attitudes toward this technology. The interviews reveal practical and moral attitudes toward motor BCIs that can impact future technology development. We discuss our empirical findings on patients' perspectives and compare them to neuroscientists' and ethicists' perspectives. Our analysis indicates only partial overlap between the potential users' and the experts' assessments of BCI-technology. It points out the importance of considering the needs and desires of the targeted patient group. Based on our findings, we suggest a multi-fold approach to the development of clinical BCIs, rooted in the participatory technology-development. We conclude that clinical BCI development needs to be explored in a disease-related and culturally sensitive way."],["dc.identifier.doi","10.3389/fnsys.2015.00064"],["dc.identifier.pmid","25964745"],["dc.identifier.purl","https://resolver.sub.uni-goettingen.de/purl?gs-1/11862"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/58379"],["dc.language.iso","en"],["dc.notes.intern","Merged from goescholar"],["dc.relation.issn","1662-5137"],["dc.rights","CC BY 4.0"],["dc.rights.uri","https://creativecommons.org/licenses/by/4.0"],["dc.title","Qualitative assessment of patients' attitudes and expectations toward BCIs and implications for future technology development."],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]