Nauck, Friedemann

[["dc.bibliographiccitation.firstpage","43"],["dc.bibliographiccitation.issue","1"],["dc.bibliographiccitation.journal","Supportive Care in Cancer"],["dc.bibliographiccitation.lastpage","49"],["dc.bibliographiccitation.volume","18"],["dc.contributor.author","Stiel, Stephanie"],["dc.contributor.author","Bertram, L."],["dc.contributor.author","Neuhaus, S."],["dc.contributor.author","Nauck, F."],["dc.contributor.author","Ostgathe, Christoph"],["dc.contributor.author","Elsner, Frank"],["dc.contributor.author","Radbruch, Lukas"],["dc.date.accessioned","2018-11-07T08:48:37Z"],["dc.date.available","2018-11-07T08:48:37Z"],["dc.date.issued","2010"],["dc.description.abstract","Most terminally ill patients request information about their remaining life span. Professionals are not generally willing to provide prognosis on survival, even though they are expected to be able to do so from their clinical experience. This study aims to find out whether the standardized instruments Palliative Prognostic Index (PPI) and the Palliative Prognostic Score (PaP-S) are appropriate, specific, and sensitive to estimate survival time in patients receiving inpatient palliative care in Germany. PPI and PaP-S were assessed in addition to the core documentation data set of the Hospice and Palliative Care Evaluation for patients admitted to the palliative care units in Aachen, Bonn, and Cologne. Time of survival was assessed with repeated phone calls to the family and was defined as the difference between the day of completion of the instruments (excluded) and the day of death (included). Survival time was compared with physicians' estimations and prognostic scores in 83 patients. Whereas the estimates of the PPI and the PaP-S correlate highly, even higher correlations are found for the physicians' prognosis and the scores. Correlations between survival time and the prognostic scores or physicians' prognosis were lower. Physicians' estimations overestimated survival time on average fourfold. Estimations were more often correct for very good and very bad prognosis. The prognostic scores are not able to produce a precise reliable prognosis for the individual patient. Nevertheless, they can be used for ethical decision making and team discussions. Estimating survival time from clinical experience seems to be easier for very bad or very good prognosis for physicians."],["dc.identifier.doi","10.1007/s00520-009-0628-0"],["dc.identifier.isi","000271963100006"],["dc.identifier.pmid","19381693"],["dc.identifier.purl","https://resolver.sub.uni-goettingen.de/purl?gs-1/6758"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/21260"],["dc.notes.intern","Merged from goescholar"],["dc.notes.status","zu prüfen"],["dc.notes.submitter","Najko"],["dc.publisher","Springer"],["dc.relation.issn","0941-4355"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.rights","Goescholar"],["dc.rights.uri","https://goescholar.uni-goettingen.de/licenses"],["dc.title","Evaluation and comparison of two prognostic scores and the physicians' estimate of survival in terminally ill patients"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.peerReviewed","yes"],["dc.type.status","published"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","771"],["dc.bibliographiccitation.issue","6"],["dc.bibliographiccitation.journal","Supportive Care in Cancer"],["dc.bibliographiccitation.lastpage","777"],["dc.bibliographiccitation.volume","19"],["dc.contributor.author","Voltz, Raymond"],["dc.contributor.author","Galushko, Maren"],["dc.contributor.author","Walisko, Johanna"],["dc.contributor.author","Karbach, Ute"],["dc.contributor.author","Ernstmann, Nicole"],["dc.contributor.author","Pfaff, Holger"],["dc.contributor.author","Nauck, Friedemann"],["dc.contributor.author","Radbruch, Lukas"],["dc.contributor.author","Ostgathe, Christoph"],["dc.date.accessioned","2018-11-07T08:55:56Z"],["dc.date.available","2018-11-07T08:55:56Z"],["dc.date.issued","2011"],["dc.description.abstract","Purpose To be able to study the desire for hastened death (DhD) in patients receiving palliative care, research tools reflecting the thoughts of patients are needed. In order to better understand what issues of \"life\" and \"death\" mean to patients receiving palliative care in Germany, we analysed their spontaneous comments during a validation study of the German version of the Schedule of Attitudes Towards Hastened Death. Method Field notes and transcripts of 39 interviews were analysed by thematic analysis. Method Field notes from 32 patients were related to differentiating either an acute or a non-acute DhD. Furthermore, the patients' comments were categorized and the distribution of codes analysed, leading to three types of comments: (a) longing for life excluding a hastened death, (b) wanting to live on, but perceiving death as an option, and (c) longing for death, but struggling for life. Conclusion The existing construct of an increased DhD may benefit from a further differentiation between \"non-acute\" and \"acute.\" In addition, it could be helpful to conceptualize \"will to live\" and \"desire for death\" not as polarities from one dimension (two sides of the same coin), but to think them as two independent dimensions."],["dc.description.sponsorship","Deutsche Forschungsgemeinschaft DFG [Vo 497/4-1]"],["dc.identifier.doi","10.1007/s00520-010-0876-z"],["dc.identifier.isi","000290029700007"],["dc.identifier.pmid","20422231"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/23027"],["dc.notes.intern","Merged from goescholar"],["dc.notes.status","zu prüfen"],["dc.notes.submitter","Najko"],["dc.publisher","Springer"],["dc.relation.issn","0941-4355"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.rights","Goescholar"],["dc.rights.uri","https://goescholar.uni-goettingen.de/licenses"],["dc.title","Issues of \"life\" and \"death\" for patients receiving palliative care-comments when confronted with a research tool"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.peerReviewed","yes"],["dc.type.status","published"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.artnumber","12"],["dc.bibliographiccitation.firstpage","1"],["dc.bibliographiccitation.issue","3"],["dc.bibliographiccitation.journal","GMS Zeitschrift für medizinische Ausbildung"],["dc.bibliographiccitation.lastpage","12"],["dc.bibliographiccitation.volume","29"],["dc.contributor.author","Ilse, B."],["dc.contributor.author","Hildebrandt, J."],["dc.contributor.author","Posselt, J."],["dc.contributor.author","Laske, A."],["dc.contributor.author","Dietz, I."],["dc.contributor.author","Borasio, G. D."],["dc.contributor.author","Kopf, A."],["dc.contributor.author","Nauck, F."],["dc.contributor.author","Elsner, F."],["dc.contributor.author","Wedding, U."],["dc.contributor.author","Alt-Epping, B."],["dc.date.accessioned","2019-07-10T08:14:07Z"],["dc.date.available","2019-07-10T08:14:07Z"],["dc.date.issued","2012"],["dc.description.abstract","Fragestellung: Mit der Änderung der ärztlichen Approbationsordnung (ÄApprO) im Jahre 2009 wurde die Palliativmedizin als 13. Querschnittsfach (Q13) verpflichtend in das studentische Curriculum eingeführt. Die Umsetzung dieser Änderung muss bis zum Beginn des Praktischen Jahres im August 2013 oder bei der Meldung zum Zweiten Abschnitt der Ärztlichen Prüfung für den Prüfungstermin im Oktober 2014 erfolgen. In vorangegangenen Umfragen wurden an den medizinischen Fakultäten in Deutschland sehr heterogene palliativmedizinische Lehrstrukturen beschrieben. Daher sollten nun die curricularen und prüfungsbezogenen Planungen der jeweiligen Fakultäten zur Implementierung eines verpflichtenden Q13 Palliativmedizin erfragt werden. Methodik: Die Bundesvertretung der Medizinstudierenden Deutschlands (bvmd) führt seit 2006 zweijährliche Umfragen an allen medizinischen Fakultäten in Deutschland zum gegenwärtigen Stand der palliativmedizinischen Lehre durch. Nach Konzeption eines Online-Fragebogens und Pilotierung erfolgte im Mai 2010 eine einmonatige Online-Umfrage. Die Daten wurden deskriptiv ausgewertet. Ergebnisse: 31 von 36 medizinischen Fakultäten nahmen an der Befragung teil. An 15 Fakultäten existierten zum Befragungszeitpunkt bereits verpflichtende Lehrveranstaltungen entsprechend der Vorgabe der neuen ÄApprO; an drei Standorten soll das Q13 Palliativmedizin erst ab dem Sommersemester 2012 verpflichtend eingeführt werden. An 15 Fakultäten bestand bereits ein Lehrcurriculum für Q13, teils angelehnt an die curricularen Vorgaben der Deutschen Gesellschaft für Palliativmedizin. Sechs Standorte beschrieben einen begonnenen Implementierungsprozess noch ohne Curriculum. An den meisten Fakultäten werden 21-40 Lehrveranstaltungsstunden angestrebt, die überwiegend in Form von Vorlesungen oder Seminaren, seltener auch in betreuungsintensiveren Formaten angeboten werden sollen. Die Mehrzahl der teilnehmenden Fakultäten strebt eine Prüfung in Form von Multiple Choice Fragen an. An 8 Universitäten bestand ein eigenständiger Lehrstuhl für Palliativmedizin (5 weitere in Planung); dies war mit einem höheren Maß an Pflichtlehre analog der Vorgabe der ÄApprO verbunden. Ein breites Spektrum an lehrbeteiligten Berufsgruppen, Fachdisziplinen und externen Kooperationspartnern wurde angegeben. Schlussfolgerung: Die infrastrukturellen Voraussetzungen, die bisherigen curricularen Planungen und der Grad der Implementierung des Q13 analog der Vorgabe der neuen ÄApprO divergieren zwischen den einzelnen medizinischen Fakultäten erheblich. Die Bemühungen um eine qualitativ hochwertige Lehre in Hinblick auf die vielschichtigen Fragestellungen bei der Betreuung schwerst- und sterbenskranker Patienten spiegeln sich in der Umfrage ebenso wider wie der besondere Stellenwert eines eigenständigen Lehrstuhls für Palliativmedizin für die Umsetzung der gesetzlichen Vorgaben. Die Mitwirkung der verschiedenen Berufsverbände an dieser Umfrage sowie das große Spektrum der Lehrbeteiligten unterstreicht die interdisziplinäre und multiprofessionelle Dimension palliativmedizinischer Lehre."],["dc.identifier.fs","591769"],["dc.identifier.pmid","22737202"],["dc.identifier.purl","https://resolver.sub.uni-goettingen.de/purl?gs-1/9539"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/61440"],["dc.language.iso","de"],["dc.notes.intern","Merged from goescholar"],["dc.relation.issn","1860-3572"],["dc.relation.orgunit","Universitätsmedizin Göttingen"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.rights","Goescholar"],["dc.rights.uri","https://goescholar.uni-goettingen.de/licenses"],["dc.subject.ddc","610"],["dc.title","Palliativmedizinische Lehre in Deutschland – Planungen der Fakultäten zum zukünftigen Querschnittsfach 13"],["dc.title.translated","Palliative Care teaching in Germany – concepts and future developments"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.subtype","original_ja"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.artnumber","8"],["dc.bibliographiccitation.issue","1"],["dc.bibliographiccitation.journal","BMC Palliative Care"],["dc.bibliographiccitation.volume","18"],["dc.contributor.author","Jansky, Maximiliane"],["dc.contributor.author","Owusu-Boakye, Sonja"],["dc.contributor.author","Nauck, Friedemann"],["dc.date.accessioned","2019-07-09T11:49:53Z"],["dc.date.available","2019-07-09T11:49:53Z"],["dc.date.issued","2019"],["dc.description.abstract","Abstract Background Migrants seem to be underrepresented in palliative care in Germany. Access barriers and challenges in care remain unclear. We aimed to provide a comprehensive insight into palliative care for migrants, using expert interviews. Methods Interviews with experts on palliative and general health care for migrants were audiotaped and transcribed. Data analysis followed a qualitative content analysis method for expert interviews proposed by Meuser and Nagel. Results In total, 13 experts from various fields (palliative and hospice care, other care, research and training) were interviewed. Experts identified access barriers on the health care system and the patient level as well as the sociopolitical level. Services don’t address migrants, who may use parallel structures. Patients may distrust the health care system, be oriented towards their home country and expect the family to care for them. In care, poor adaptation and inflexibility of health care services regarding needs of migrant patients because of scarce resources, patients’ preferences which may contradict professionals' values, and communication both on the verbal and nonverbal level were identified as the main challenges. Conflicts between patients, families and professionals are at risk to be interpreted exclusively as cultural conflicts. Palliative care providers should use skilled interpreters instead of family interpreters or unskilled staff members, and focus on training cultural competence. Furthermore, intercultural teams could enhance palliative care provision for migrants. Conclusions Though needs and wishes of migrant patients are often found to be similar to those of non-migrant patients, there are migration-specific aspects that can influence care provision at the end of life. Migration should be regarded as a biographical experience that has a severe and ongoing impact on the life of an individual and their family. Language barriers have to be considered, especially regarding patients' right to informed decision making. The reimbursement of interpreters in health care remains an open question."],["dc.identifier.doi","10.1186/s12904-019-0392-y"],["dc.identifier.purl","https://resolver.sub.uni-goettingen.de/purl?gs-1/15799"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/59649"],["dc.language.iso","en"],["dc.notes.intern","Merged from goescholar"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.rights","CC BY 4.0"],["dc.rights.uri","https://creativecommons.org/licenses/by/4.0"],["dc.title","“An odyssey without receiving proper care” – experts’ views on palliative care provision for patients with migration background in Germany"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.subtype","original_ja"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","19"],["dc.bibliographiccitation.issue","1"],["dc.bibliographiccitation.journal","Ethik in der Medizin"],["dc.bibliographiccitation.lastpage","28"],["dc.bibliographiccitation.volume","24"],["dc.contributor.author","Alt-Epping, Bernd"],["dc.contributor.author","Nauck, Friedemann"],["dc.date.accessioned","2018-11-07T09:13:02Z"],["dc.date.available","2018-11-07T09:13:02Z"],["dc.date.issued","2012"],["dc.description.abstract","Definition of the problem Therapeutic decision making generally relies on a given underlying medical indication and the patient's informed consent. So far, the concept of medical indication has been analyzed and operationalized for clinical purposes by medical ethics, and the concept of the patient's informed consent is broadly secured by legislation and clinical and ethical guidelines. Informed consent implies thorough and appropriate delivery of information and an according treatment option communicated to the patient, who can accept or refuse this offer. Within this concept of medical decision making, it is under debate in medical ethics, to what extent the patient's (or the relatives') desire for certain treatment options should play a role, if at all. Arguments and conclusions This article discusses the significance of the patients' desire as an independent normative factor in medical decision making, besides ascertaining the underlying medical indication and the patient's informed consent. A case report illustrates the spectrum of concepts of autonomy, and points to the dilemma that might result on a diverging appraisal on medical usefulness and futility between patient and physician in cancer care and palliative care. The case report finally tries to incorporate the patient's desire as a relevant co-factor into conventional concepts of therapeutic decision making."],["dc.identifier.doi","10.1007/s00481-011-0147-7"],["dc.identifier.isi","000300848600003"],["dc.identifier.purl","https://resolver.sub.uni-goettingen.de/purl?gs-1/7327"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/27077"],["dc.notes.intern","Merged from goescholar"],["dc.notes.status","zu prüfen"],["dc.notes.submitter","Najko"],["dc.publisher","Springer"],["dc.relation.issn","0935-7335"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.rights","Goescholar"],["dc.rights.uri","https://goescholar.uni-goettingen.de/licenses"],["dc.title","The patient's desire-an independent ethical factor contributing to therapeutic decision making?"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.peerReviewed","yes"],["dc.type.status","published"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","203"],["dc.bibliographiccitation.issue","3"],["dc.bibliographiccitation.journal","Notfall + Rettungsmedizin"],["dc.bibliographiccitation.lastpage","210"],["dc.bibliographiccitation.volume","24"],["dc.contributor.author","Rieder, N."],["dc.contributor.author","Mühe, K."],["dc.contributor.author","Nauck, F."],["dc.contributor.author","Alt-Epping, B."],["dc.date.accessioned","2021-04-14T08:26:08Z"],["dc.date.available","2021-04-14T08:26:08Z"],["dc.date.issued","2020"],["dc.identifier.doi","10.1007/s10049-020-00713-8"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/81847"],["dc.language.iso","de"],["dc.notes.intern","DOI Import GROB-399"],["dc.relation.eissn","1436-0578"],["dc.relation.issn","1434-6222"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.rights","CC BY 4.0"],["dc.title","„Leben retten bis der Arzt kommt?“"],["dc.title.alternative","Konflikte und wahrgenommene Belastung des nichtärztlichen Rettungsdienstpersonals im Umgang mit Patienten mit fortgeschrittener unheilbarer Erkrankung"],["dc.title.translated","“Saving lives until the physician arrives?”: Conflicts and perceived burden of paramedics when caring for patients with advanced, incurable diseases"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.subtype","original_ja"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","605"],["dc.bibliographiccitation.issue","6"],["dc.bibliographiccitation.journal","Der Schmerz"],["dc.bibliographiccitation.lastpage","612"],["dc.bibliographiccitation.volume","24"],["dc.contributor.author","Bertram, L."],["dc.contributor.author","Stiel, Stephanie"],["dc.contributor.author","Elsner, Frank"],["dc.contributor.author","Radbruch, Lukas"],["dc.contributor.author","Davies, A."],["dc.contributor.author","Nauck, F."],["dc.contributor.author","Alt-Epping, Bernd"],["dc.date.accessioned","2018-11-07T08:36:33Z"],["dc.date.available","2018-11-07T08:36:33Z"],["dc.date.issued","2010"],["dc.description.abstract","Of cancer patients receiving palliative care, 80% suffer from cancer pain, and again 80% of these patients report breakthrough pain. This study explores the patients' perception of breakthrough pain, their experiences with existing therapeutic regimens and their expectations regarding an ideal breakthrough pain medication. From November 2008 to February 2010 two German palliative care units recruited 80 in- or outpatient cancer patients who completed a standardized questionnaire on breakthrough pain characteristics, analgesic medication, attitudes towards new treatment approaches for breakthrough pain, and experiences with alternative routes of drug administration as part of the \"European Survey of Oncology Patients' Experience of Breakthrough Pain\". The study participants suffered from 1-12 episodes of either incident (47.5%) or spontaneous pain (37.5%) per day which were perceived as \"severe\" in 71% of all cases. These exacerbations highly interfered with the patients' general activity, mood, walking ability, and normal work. Overall, 64% of the patients reported alleviation from pharmacological (26%) and non-pharmacological (73%) interventions. Subcutaneous (40%) and oral (39%) routes were used frequently; intranasal (1.25%) and intrapulmonary (1.25%) routes were used rarely. Only 64% of all participants stated an overall satisfaction with their breakthrough analgesia. The diagnosis and treatment of breakthrough pain seems to be conducted in a suboptimal manner, and standard recommendations on breakthrough pain relief are not implemented consistently. Possible causes of pain should be taken into account as well as multi-professional treatment interventions and alternative routes of administration of fast onset, effective drugs should be considered."],["dc.identifier.doi","10.1007/s00482-010-0989-9"],["dc.identifier.isi","000284958500007"],["dc.identifier.pmid","21046170"],["dc.identifier.purl","https://resolver.sub.uni-goettingen.de/purl?gs-1/6207"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/18340"],["dc.notes.intern","Merged from goescholar"],["dc.notes.status","zu prüfen"],["dc.notes.submitter","Najko"],["dc.relation.issn","0932-433X"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.rights","CC BY-NC 2.0"],["dc.title","Experiences of cancer patients with breakthrough pain and pharmacological treatments"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.peerReviewed","yes"],["dc.type.subtype","original_ja"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","1"],["dc.bibliographiccitation.journal","BMJ Supportive & Palliative Care"],["dc.bibliographiccitation.lastpage","9"],["dc.contributor.author","Wikert, Julia"],["dc.contributor.author","Gesell, Daniela"],["dc.contributor.author","Bausewein, Claudia"],["dc.contributor.author","Jansky, Maximiliane Katharina"],["dc.contributor.author","Nauck, Friedemann"],["dc.contributor.author","Kranz, Steven"],["dc.contributor.author","Hodiamont, Farina"],["dc.date.accessioned","2022-07-12T11:20:38Z"],["dc.date.available","2022-07-12T11:20:38Z"],["dc.date.issued","2022-02-08"],["dc.description.abstract","The heterogeneity of specialist palliative care services requires a classification to enable a clear description and comparison. In Germany, specialist palliative care is provided by palliative care units, palliative care advisory teams in hospitals and palliative home care teams. The differentiation between the three care settings can serve as a first level of classification. However, due to profound variations in regulatory structures and financing systems, services within each setting are heterogeneous and characteristics remain unclear, which impedes quality management. Further characteristics of specialist palliative care models need to be considered to allow for differentiation. Thus, services should be described on a polyhierarchical basis, such as a typology, representing relevant characteristics. We aimed at the development of a comprehensive classification to facilitate the description and differentiation of specialist palliative care models."],["dc.identifier.doi","10.1136/bmjspcare-2021-003435"],["dc.identifier.pmid","35135807"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/112474"],["dc.language.iso","en"],["dc.relation.doi","10.1136/bmjspcare-2021-003435"],["dc.relation.eissn","2045-4368"],["dc.relation.issn","2045-435X"],["dc.relation.issn","2045-4368"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.rights","CC BY 4.0"],["dc.title","Specialist palliative care classification: typology development"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.subtype","original_ja"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]

[["dc.bibliographiccitation.firstpage","1157"],["dc.bibliographiccitation.issue","9"],["dc.bibliographiccitation.journal","Supportive Care in Cancer"],["dc.bibliographiccitation.lastpage","1163"],["dc.bibliographiccitation.volume","18"],["dc.contributor.author","Ostgathe, Christoph"],["dc.contributor.author","Gaertner, Jan"],["dc.contributor.author","Kotterba, Maren"],["dc.contributor.author","Klein, Sebastian"],["dc.contributor.author","Lindena, Gabriele"],["dc.contributor.author","Nauck, Friedemann"],["dc.contributor.author","Radbruch, Lukas"],["dc.contributor.author","Voltz, Raymond"],["dc.date.accessioned","2018-11-07T08:40:13Z"],["dc.date.available","2018-11-07T08:40:13Z"],["dc.date.issued","2010"],["dc.description.abstract","Cancer may affect the central nervous system either by primary or secondary brain tumours (PBT/SBT). Specific needs of these patients and special requirements of services caring for them have not been adequately addressed so far. Since 1999, an annual, 3-month census is being conducted in different palliative care settings throughout Germany. Pooled data from the years 2002-2005 were analysed to test for differences between patients with PBT, SBT and other palliative care patients (OP). Symptom frequencies, ECOG status and nursing needs were tested for differences (chi A(2)). Free text entries for reasons for admission were recorded, categorised and analysed descriptively. A total of 5,684 patients were documented (PBT n = 153, 2.7%; SBT n = 661, 11.9%; OP n = 4,872, 85.4%). For patients with PBT, poor functional status and high need for nursing support was reported more frequently than for patients with SBT and OP. For patients with PBT/SBT physical symptoms (pain, nausea, vomiting, constipation and loss of appetite) were documented less frequently and in lower intensity than for OP. However, nursing, psychological, and social problems/symptoms were documented significantly more often and showed higher intensity, particularly the patients' need for support with the activities of daily living, disorientation/confusion of the patients and overburdening of the family. For 67% of all patients, a reason for admission was documented in free text. Main reasons were symptom control (OP > SBT > PBT), social issues (PBT > SBT > OP), functional deficits (PBT > SBT > OP) and cognitive impairment (PBT/SBT > OP). Distinct neurological deficits and problems were documented more often as secondary ICD-diagnoses than as a leading reason for admission. The specific palliative care problems and the rationales leading to health care utilisation point to the need for an appropriate interdisciplinary and multi-professional provision of care for patients with brain malignancies, with a particular view on the needs of the families and an early integration of social and psychological support."],["dc.identifier.doi","10.1007/s00520-009-0735-y"],["dc.identifier.isi","000280405800006"],["dc.identifier.pmid","19763633"],["dc.identifier.purl","https://resolver.sub.uni-goettingen.de/purl?gs-1/6760"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/19174"],["dc.notes.intern","Merged from goescholar"],["dc.notes.status","zu prüfen"],["dc.notes.submitter","Najko"],["dc.publisher","Springer"],["dc.relation.issn","0941-4355"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.rights","Goescholar"],["dc.rights.uri","https://goescholar.uni-goettingen.de/licenses"],["dc.title","Differential palliative care issues in patients with primary and secondary brain tumours"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.peerReviewed","yes"],["dc.type.status","published"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]

[["dc.contributor.author","Alt-Epping, Bernd"],["dc.contributor.author","Nauck, Friedemann"],["dc.date.accessioned","2022-04-05T08:58:39Z"],["dc.date.available","2022-04-05T08:58:39Z"],["dc.date.issued","2019"],["dc.description.abstract","Was verstehen wir unter Palliativmedizin/Palliative Care/Palliativversorgung? Welchen Belastungen sind Patienten und deren Angehörige in unheilbaren und fortgeschrittenen Erkrankungssituationen ausgesetzt? Wie kann eine entsprechende umfassende Behandlung und Unterstützung bewerkstelligt werden? Wie kann eine Entscheidung zur Begrenzung oder zur Fortführung therapeutischer Maßnahmen am Lebensende begründet werden? Das vorliegende Skript soll Medizinstudierenden und allen Interessierten einen Einblick in die Notwendigkeiten und Möglichkeiten umfassender palliativmedizinischer Unterstützung ermöglichen und zum Nachlesen sowie für die Vorbereitung für die palliativmedizinischen Prüfungen im QB 13 und im Staatsexamen eine Hilfe sein."],["dc.description.edition","7"],["dc.format.extent","92"],["dc.identifier.doi","10.17875/gup2019-1141"],["dc.identifier.isbn","978-3-86395-400-0"],["dc.identifier.purl","https://resolver.sub.uni-goettingen.de/purl?univerlag-isbn-978-3-86395-400-0"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/106333"],["dc.identifier.url","https://publications.goettingen-research-online.de/handle/2/106333"],["dc.identifier.urn","urn:nbn:de:gbv:7-isbn-978-3-86395-400-0-2"],["dc.language.iso","de"],["dc.notes.intern","Import GROB-550"],["dc.publisher","Universitätsverlag Göttingen"],["dc.publisher.place","Göttingen"],["dc.relation.orgunit","Klinik für Palliativmedizin"],["dc.rights","CC BY-SA 4.0"],["dc.rights.uri","http://creativecommons.org/licenses/by-sa/4.0/deed.de"],["dc.title","Palliativmedizin - das Skript"],["dc.title.subtitle","zum Querschnittsfach 13 an der Universitätsmedizin Göttingen (UMG)"],["dc.type","book"],["dc.type.internalPublication","yes"],["dc.type.subtype","manual_book"],["dspace.entity.type","Publication"]]