Now showing 1 - 10 of 87
  • 2020Journal Article
    [["dc.bibliographiccitation.issue","1"],["dc.bibliographiccitation.journal","BMC Medical Ethics"],["dc.bibliographiccitation.volume","21"],["dc.contributor.author","Alpinar-Sencan, Zümrüt"],["dc.contributor.author","Schicktanz, Silke"],["dc.date.accessioned","2020-12-10T18:38:57Z"],["dc.date.available","2020-12-10T18:38:57Z"],["dc.date.issued","2020"],["dc.identifier.doi","10.1186/s12910-020-00476-4"],["dc.identifier.eissn","1472-6939"],["dc.identifier.purl","https://resolver.sub.uni-goettingen.de/purl?gs-1/17314"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/77491"],["dc.language.iso","en"],["dc.notes.intern","DOI Import GROB-354"],["dc.notes.intern","Merged from goescholar"],["dc.rights","CC BY 4.0"],["dc.rights.uri","https://creativecommons.org/licenses/by/4.0"],["dc.title","Addressing ethical challenges of disclosure in dementia prediction: limitations of current guidelines and suggestions to proceed"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.version","published_version"],["dspace.entity.type","Publication"]]
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  • 2021Journal Article
    [["dc.bibliographiccitation.firstpage","n/a"],["dc.bibliographiccitation.journal","Bioethics"],["dc.bibliographiccitation.lastpage","n/a"],["dc.contributor.author","Schicktanz, Silke"],["dc.contributor.author","Michl, Susanne"],["dc.contributor.author","Stoff, Heiko"],["dc.date.accessioned","2021-04-14T08:30:05Z"],["dc.date.available","2021-04-14T08:30:05Z"],["dc.date.issued","2021"],["dc.description.abstract","Abstract Slippery slope‐, taboo‐breaking‐ or Nazi‐analogy‐arguments are common, but not uncontroversial examples of the complex relationship between bioethics and the various ways of using historical arguments in these debates. In our analysis we examine first the relationship between bioethics and medical history both as separate disciplines and as argumentative practices. Secondly, we then analyse six common types of historical arguments in bioethics (slippery slope‐, analogy‐, continuity‐, knockout/taboo‐, ethical progress‐ and accomplice‐arguments), some as arguments within the academic debate of bioethics, others as arguments within political and public debates over bioethical issues. We conclude by suggesting to bioethicists to better understand historical arguments as socially and culturally embedded practices of critical reflection of power, medical and government paternalism and possible future scenarios. More interdisciplinarity between ethicists and medical historians is needed to appropriately rationalize and understand the different legacies."],["dc.description.sponsorship","Bundesministerium für Bildung und Forschung http://dx.doi.org/10.13039/501100002347"],["dc.description.sponsorship","Ministry of Education http://dx.doi.org/10.13039/100009950"],["dc.identifier.doi","10.1111/bioe.12841"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/83102"],["dc.language.iso","en"],["dc.notes.intern","DOI Import GROB-399"],["dc.relation.eissn","1467-8519"],["dc.relation.issn","0269-9702"],["dc.rights","This is an open access article under the terms of the Creative Commons Attribution‐NonCommercial‐NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made."],["dc.title","Bioethics and the argumentative legacy of atrocities in medical history: Reflections on a complex relationship"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dspace.entity.type","Publication"]]
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  • 2019Journal Article
    [["dc.bibliographiccitation.firstpage","424"],["dc.bibliographiccitation.issue","5"],["dc.bibliographiccitation.journal","Journal of Empirical Research on Human Research Ethics"],["dc.bibliographiccitation.lastpage","427"],["dc.bibliographiccitation.volume","14"],["dc.contributor.author","Wöhlke, Sabine"],["dc.contributor.author","Schicktanz, Silke"],["dc.date.accessioned","2020-12-10T18:38:34Z"],["dc.date.available","2020-12-10T18:38:34Z"],["dc.date.issued","2019"],["dc.identifier.doi","10.1177/1556264619862395"],["dc.identifier.eissn","1556-2654"],["dc.identifier.issn","1556-2646"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/77371"],["dc.language.iso","en"],["dc.notes.intern","DOI Import GROB-354"],["dc.title","Special Issue: Why Ethically Reflect on Empirical Studies in Empirical Ethics? Case Studies and Commentaries"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dspace.entity.type","Publication"]]
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  • 2022Journal Article Research Paper
    [["dc.bibliographiccitation.firstpage","205395172210926"],["dc.bibliographiccitation.issue","1"],["dc.bibliographiccitation.journal","Big Data & Society"],["dc.bibliographiccitation.volume","9"],["dc.contributor.author","Buhr, Lorina"],["dc.contributor.author","Schicktanz, Silke"],["dc.date.accessioned","2022-06-01T09:39:40Z"],["dc.date.available","2022-06-01T09:39:40Z"],["dc.date.issued","2022"],["dc.description.abstract","Healthcare provision, like many other sectors of society, is undergoing major changes due to the increased use of data-driven methods and technologies. This increased reliance on big data in medicine can lead to shifts in the norms that guide healthcare providers and patients. Continuous critical normative reflection is called for to track such potential changes. This article presents the results of an interview-based study with 20 German and Swiss experts from the fields of medicine, life science research, informatics and humanities of digitalisation. The aim of the study was to explore expert opinions regarding current challenges and opportunities related to data-driven medicine and medical research and to provide a methodological framework for empirically grounded, continuous normative reflection. To this end, we developed a heuristic tool to map and structure empirical findings for normative analysis. Using this tool, our interview material points to a polarisation between individualistic and collectivistic orientated argumentations among experts. The study shows that a multilevel analysis is required to deal with complex normative implications of data-driven approaches in medical research and healthcare."],["dc.description.sponsorship","Open-Access-Publikationsfonds 2022"],["dc.description.sponsorship","HiGHmed consortium funded by the Bundesministerium für Bildung und Forschung"],["dc.identifier.doi","10.1177/20539517221092653"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/108531"],["dc.language.iso","en"],["dc.notes.intern","DOI-Import GROB-572"],["dc.relation.eissn","2053-9517"],["dc.relation.issn","2053-9517"],["dc.rights","CC BY 4.0"],["dc.rights.uri","https://creativecommons.org/licenses/by/4.0/"],["dc.title","Individual benefits and collective challenges: Experts’ views on data-driven approaches in medical research and healthcare in the German context"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.subtype","original_ja"],["dspace.entity.type","Publication"]]
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  • 2021Journal Article
    [["dc.bibliographiccitation.artnumber","93"],["dc.bibliographiccitation.issue","3"],["dc.bibliographiccitation.journal","History & Philosophy of the Life Sciences"],["dc.bibliographiccitation.volume","43"],["dc.contributor.author","Schicktanz, Silke"],["dc.contributor.author","Schweda, Mark"],["dc.date.accessioned","2021-10-01T09:57:24Z"],["dc.date.available","2021-10-01T09:57:24Z"],["dc.date.issued","2021"],["dc.description.abstract","Abstract Technological approaches are increasingly discussed as a solution for the provision of support in activities of daily living as well as in medical and nursing care for older people. The development and implementation of such assistive technologies for eldercare raise manifold ethical, legal, and social questions. The discussion of these questions is influenced by theoretical perspectives and approaches from medical and nursing ethics, especially the principlist framework of autonomy, non-maleficence, beneficence, and justice. Tying in with previous criticism, the present contribution is taking these principles as a starting point and as a frame of reference to be critically re-examined. It thus aims to outline how existing ethical frameworks need to be extended or reconsidered to capture the ethical issues posed by technological developments regarding care for older people. In a first step, we provide a brief overview of assistive technologies in eldercare according to their purposes and functions. In the next step, we discuss how the questions and problems raised by new technologies in eldercare call for an expansion, re-interpretation, and revision of the principlist framework. We underline that the inclusion of ethical perspectives from engineering and computer science as well as a closer consideration of socio-political dimensions and fundamental anthropological and praxeological questions are needed."],["dc.identifier.doi","10.1007/s40656-021-00447-x"],["dc.identifier.pii","447"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/89834"],["dc.language.iso","en"],["dc.notes.intern","DOI Import GROB-469"],["dc.relation.eissn","1742-6316"],["dc.relation.issn","0391-9714"],["dc.title","Aging 4.0? Rethinking the ethical framing of technology-assisted eldercare"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dspace.entity.type","Publication"]]
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  • 2009Journal Article
    [["dc.bibliographiccitation.artnumber","PII 916926517"],["dc.bibliographiccitation.firstpage","401"],["dc.bibliographiccitation.issue","4"],["dc.bibliographiccitation.journal","New Genetics and Society"],["dc.bibliographiccitation.lastpage","414"],["dc.bibliographiccitation.volume","28"],["dc.contributor.author","Raz, Aviad E."],["dc.contributor.author","Schicktanz, Silke"],["dc.date.accessioned","2018-11-07T08:35:15Z"],["dc.date.available","2018-11-07T08:35:15Z"],["dc.date.issued","2009"],["dc.description.abstract","Germany and Israel represent opposite regulatory approaches and bioethical outlooks regarding genetic testing. This study examines lay attitudes (including attitudes of people affected by genetic diseases) in both countries towards genetic testing of adults, focusing on the differences between cultural and personal argumentations, as well as between affected and non-affected perspectives. With regard to three major emerging themes - medical technology/technocratic medicine; economic aspects of healthcare; and personal decision-making - a national contrast was apparent on the cultural level of argumentation, but not in the personal context of decision-making or in the concerns of people affected by genetic diseases. We conclude by discussing the interplay of national culture and individual experience in constructing arguments about the harms and benefits of genetic testing, and the implications for the study of cross-cultural bioethics in the context of ogenetic responsibilityo."],["dc.identifier.doi","10.1080/14636770903314533"],["dc.identifier.isi","000274756500006"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/18018"],["dc.notes.status","zu prüfen"],["dc.notes.submitter","Najko"],["dc.publisher","Routledge Journals, Taylor & Francis Ltd"],["dc.relation.issn","1463-6778"],["dc.title","Lay perceptions of genetic testing in Germany and Israel: the interplay of national culture and individual experience"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.peerReviewed","yes"],["dc.type.status","published"],["dspace.entity.type","Publication"]]
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  • 2008Journal Article
    [["dc.bibliographiccitation.firstpage","181"],["dc.bibliographiccitation.issue","3"],["dc.bibliographiccitation.journal","Ethik in der Medizin"],["dc.bibliographiccitation.lastpage","190"],["dc.bibliographiccitation.volume","20"],["dc.contributor.author","Schicktanz, Silke"],["dc.date.accessioned","2018-11-07T11:11:16Z"],["dc.date.available","2018-11-07T11:11:16Z"],["dc.date.issued","2008"],["dc.description.abstract","Definition of the problem The value which is attached to advance directives by the ethico-legal discourse could be contrasted with the unreadiness of the public to hold such documents. This raises the ethical question whether there are any crucial arguments in favour of composing advance directives. Arguments and Conclusion Of special relevance are issues such as a good life, which focus on desirability and wisdom of such a decision. One could highlight the positive meaning of such documents as instruments of self-interpretation and life-planning by referring to a concept of identity, extended with a sociocultural perspective. But this socio-cultural dimension sensitizes also to new ethical problems, which are induced by interpretation work done by third parties and the critical role of proxies. This identifies an important deficit in recent socio-empirical and in ethical research concerning the problems of interpretation, deliberation and responsibility of proxies."],["dc.identifier.doi","10.1007/s00481-008-0571-5"],["dc.identifier.isi","000259565900003"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/53393"],["dc.notes.status","zu prüfen"],["dc.notes.submitter","Najko"],["dc.publisher","Springer"],["dc.relation.issn","0935-7335"],["dc.title","Between self- and external interpretation: the mutual relationship between socio-cultural and ethical aspects of advance directives"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.peerReviewed","yes"],["dc.type.status","published"],["dspace.entity.type","Publication"]]
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  • 2021Journal Article
    [["dc.bibliographiccitation.firstpage","861"],["dc.bibliographiccitation.issue","11"],["dc.bibliographiccitation.journal","Journal of Medical Ethics"],["dc.bibliographiccitation.lastpage","867"],["dc.bibliographiccitation.volume","48"],["dc.contributor.affiliation","Alpinar-Sencan, Zümrüt; \r\n1\r\nDepartment for Medical Ethics and History of Medicine, University Medical Center Göttingen, Göttingen, Niedersachsen, Germany"],["dc.contributor.affiliation","Schicktanz, Silke; \r\n1\r\nDepartment for Medical Ethics and History of Medicine, University Medical Center Göttingen, Göttingen, Niedersachsen, Germany"],["dc.contributor.affiliation","Ulitsa, Natalie; \r\n2\r\nDepartment of Community Mental Health, University of Haifa, Haifa, Israel"],["dc.contributor.affiliation","Shefet, Daphna; \r\n3\r\nShalvata Mental Health Care Center, Faculty of Medicine, Tel Aviv University, Tel Aviv, Israel"],["dc.contributor.affiliation","Werner, Perla; \r\n2\r\nDepartment of Community Mental Health, University of Haifa, Haifa, Israel"],["dc.contributor.author","Alpinar-Sencan, Zümrüt"],["dc.contributor.author","Schicktanz, Silke"],["dc.contributor.author","Ulitsa, Natalie"],["dc.contributor.author","Shefet, Daphna"],["dc.contributor.author","Werner, Perla"],["dc.date.accessioned","2021-08-12T07:45:28Z"],["dc.date.available","2021-08-12T07:45:28Z"],["dc.date.issued","2021"],["dc.date.updated","2022-11-11T13:12:28Z"],["dc.description.abstract","Recent advances in biomarkers may soon make it possible to identify persons at high risk for late-onset Alzheimer’s disease at a presymptomatic (preclinical) stage. Popular demand for testing is increasing despite the lack of cure and effective prevention options and despite uncertainties regarding the predictive value of biomarker tests. This underscores the relevance of the ethical, cultural and social implications of predictive testing and the need to advance the bioethical debate beyond considerations of clinical consequences. Our qualitative study included three groups of affected persons: People with mild neurocognitive disorder, their relatives and family caregivers of people with dementia. We explored their moral motivations regarding predictive, biomarker-based testing and preclinical diagnostics. We interviewed affected individuals in Germany and Israel (N=88; 44 participants in each country). Transcripts of 12 focus groups and 12 semistructured interviews were content analysed with a focus on the moral motivations of affected persons in their justification of why they accept or reject predictive testing and early diagnosis. We grouped the underlying aspects of moral motivation into four ethical categories: beneficence as a form of personal utility focusing on well-being, the ties of responsibility linking families and their individual members, the importance of self-determination by later life planning and notions of a good life. In general, cultural parallels among these motives were very obvious. Cultural variation occurred mainly in openness to suicide, scepticism about test validity and emphasis on personal autonomy. The study underscores the importance of counselling for life-planning issues and of informing test candidates about problems with test validity and about the ambiguity of test results."],["dc.description.abstract","Recent advances in biomarkers may soon make it possible to identify persons at high risk for late-onset Alzheimer’s disease at a presymptomatic (preclinical) stage. Popular demand for testing is increasing despite the lack of cure and effective prevention options and despite uncertainties regarding the predictive value of biomarker tests. This underscores the relevance of the ethical, cultural and social implications of predictive testing and the need to advance the bioethical debate beyond considerations of clinical consequences. Our qualitative study included three groups of affected persons: People with mild neurocognitive disorder, their relatives and family caregivers of people with dementia. We explored their moral motivations regarding predictive, biomarker-based testing and preclinical diagnostics. We interviewed affected individuals in Germany and Israel (N=88; 44 participants in each country). Transcripts of 12 focus groups and 12 semistructured interviews were content analysed with a focus on the moral motivations of affected persons in their justification of why they accept or reject predictive testing and early diagnosis. We grouped the underlying aspects of moral motivation into four ethical categories: beneficence as a form of personal utility focusing on well-being, the ties of responsibility linking families and their individual members, the importance of self-determination by later life planning and notions of a good life. In general, cultural parallels among these motives were very obvious. Cultural variation occurred mainly in openness to suicide, scepticism about test validity and emphasis on personal autonomy. The study underscores the importance of counselling for life-planning issues and of informing test candidates about problems with test validity and about the ambiguity of test results."],["dc.description.sponsorship","http://dx.doi.org/10.13039/501100001736German-Israeli Foundation for Scientific Research and Development"],["dc.identifier","34290115"],["dc.identifier.doi","10.1136/medethics-2020-106990"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/88474"],["dc.language.iso","en"],["dc.notes.intern","DOI Import GROB-448"],["dc.publisher","BMJ Publishing Group Ltd and Institute of Medical Ethics"],["dc.relation.eissn","1473-4257"],["dc.relation.issn","0306-6800"],["dc.rights.uri","http://creativecommons.org/licenses/by-nc/4.0/"],["dc.title","Moral motivation regarding dementia risk testing among affected persons in Germany and Israel"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dspace.entity.type","Publication"]]
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  • 2018Journal Article
    [["dc.bibliographiccitation.firstpage","145"],["dc.bibliographiccitation.issue","1"],["dc.bibliographiccitation.journal","Journal of Alzheimer's Disease"],["dc.bibliographiccitation.lastpage","155"],["dc.bibliographiccitation.volume","62"],["dc.contributor.author","Schweda, Mark"],["dc.contributor.author","Kögel, Anna"],["dc.contributor.author","Bartels, Claudia"],["dc.contributor.author","Wiltfang, Jens"],["dc.contributor.author","Schneider, Anja"],["dc.contributor.author","Schicktanz, Silke"],["dc.contributor.editor","Grill, Joshua"],["dc.date.accessioned","2020-12-10T18:44:11Z"],["dc.date.available","2020-12-10T18:44:11Z"],["dc.date.issued","2018"],["dc.identifier.doi","10.3233/JAD-170443"],["dc.identifier.eissn","1875-8908"],["dc.identifier.issn","1387-2877"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/78356"],["dc.notes.intern","DOI Import GROB-354"],["dc.title","Prediction and Early Detection of Alzheimer’s Dementia: Professional Disclosure Practices and Ethical Attitudes"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dspace.entity.type","Publication"]]
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  • 2014Journal Article
    [["dc.bibliographiccitation.firstpage","269"],["dc.bibliographiccitation.issue","3"],["dc.bibliographiccitation.journal","Aging & Mental Health"],["dc.bibliographiccitation.lastpage","275"],["dc.bibliographiccitation.volume","18"],["dc.contributor.author","Portacolone, Elena"],["dc.contributor.author","Berridge, Clara"],["dc.contributor.author","Johnson, Julene K."],["dc.contributor.author","Schicktanz, Silke"],["dc.date.accessioned","2018-11-07T09:41:22Z"],["dc.date.available","2018-11-07T09:41:22Z"],["dc.date.issued","2014"],["dc.description.abstract","Objectives: The increasing number of older adults with dementia is a large and growing public health problem. Alzheimer's disease, the prevailing form of dementia, is projected to quadruple worldwide. To date, the care and social integration of individuals with dementia is complicated by limited collaborations between biomedicine and other disciplines. The objective of this paper is therefore to reflect on the orientation of biomedicine with regard to the science of dementia, and to articulate a path for moving forward. Methods: The authors drew upon, and expanded, the insights of an interdisciplinary, international workshop entitled Bioethics and the Science of Aging: The Case of Dementia' held in October 2012 at the University of California in Berkeley.Results: The care of individuals with dementia compels solid interdisciplinary collaborations. There are several issues affecting the care of individuals with dementia: (1) an evolving definition of dementia; (2) the ambiguous benefits of the diagnosis of dementia; (3) ethical conflicts concerning consent processes and clinical trials; and (4) a limited understanding of the perspective of the person with dementia.Conclusion: We argue that it is time for a renewed dialogue between biomedicine and other disciplines -- particularly public health, the social sciences, the medical humanities and bioethics. This interdisciplinary dialogue would facilitate a process of self-reflection within biomedicine. This dialogue will also provide the foundation for equitable public health interventions and will further prioritize the values and preferences of individuals with dementia, as well as their care and social integration."],["dc.identifier.doi","10.1080/13607863.2013.837149"],["dc.identifier.isi","000331864400001"],["dc.identifier.pmid","24180580"],["dc.identifier.uri","https://resolver.sub.uni-goettingen.de/purl?gro-2/33714"],["dc.notes.status","zu prüfen"],["dc.notes.submitter","Najko"],["dc.publisher","Routledge Journals, Taylor & Francis Ltd"],["dc.relation.issn","1364-6915"],["dc.relation.issn","1360-7863"],["dc.title","Time to reinvent the science of dementia: the need for care and social integration"],["dc.type","journal_article"],["dc.type.internalPublication","yes"],["dc.type.peerReviewed","yes"],["dc.type.status","published"],["dspace.entity.type","Publication"]]
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